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Asigmon
Multiple Myeloma Discussion • October 17, 2023
Constant Blood Transfusions for GI Bleeds?
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My sister is fighting mm. Was first diagnosed late April this year. She has been struggling with constantly needing units of blood (like over 30 units before they were able to find the source where her blood was going. They found several avm’s in her lower bowel and small intestine which were all cauterized. She did well for three weeks before she needed another unit of blood. We hoped that she would not need more for another month but two weeks later she needed two more units. I’ve been reading several articles and blogs about mm and support group chats looking for someone one with similar experience but so far I haven’t found anyone. Is this normal for mm patients?
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LaurieC
Multiple Myeloma Discussion • October 14, 2023
Concern About Rising Light Chains in Remission?
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Im a 59 yr old woman w t(4,14) HR lambda light chain MM. in remission after a ASCT one year ago. My kappa light chains are going up each month, altho m spike still 0; should I be worried?
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CoachB
Multiple Myeloma Discussion • October 14, 2023
Post CAR-T Vaccinations: Sharing Schedules?
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I'd like to know what vaccinations post CAR-T your center is giving and when as I understand most antibodies are lost since the CAR-Ts can't tell the normal from abnormal plasma cells. Please identify which CAR-T you had as well. TYIA.
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Reeree2305
Multiple Myeloma Discussion • October 14, 2023
Experiencing Rising Light Chains, No M-Spike?
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Hi I had a Plasmacytoma in July last year … very large … this year my bloods continue to go up no M Spike just high Kappa Light Chains and Serum B2 is high anyone experience this? Feeling little anxious about it
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SetyBlue
Multiple Myeloma Discussion • October 11, 2023
Melphalan Hair Loss: Regrowth Timeline & Coping?
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Let’s talk about hair loss from melphalan. I know, in a grand scheme of things, it’s a pretty minor side effect. However, it’s emotionally scary. How long does it take for the hair to start growing back? How did you deal with the hair loss?
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alanaspadalik
Multiple Myeloma Discussion • October 10, 2023
Screening Questions With a Family History
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Hello my mom has MGUS and my grandmother had Multiple Myeloma. What measures can I take as a 26 y/o healthy female. What lab work can I get drawn at my next physical? Do I need to go to a hematologist?