Hello all. Does Medicare Part D usually cover Revlimid? Should we be looking for a specific Part D plan? Right now we have very good commercial insurance that fully covers it, but we will be going on Medicare with a gap plan starting in July 2024. Thank you for any suggestions you may have. We're new to Medicare.

I had Car T in June of 2023. I’ve recently started having headaches. Has anyone else experienced this?

Need good questions to ask hematologist at the end of husbands induction cycle three as we approach SCT.

I have been on this journey since May 2021. 3 stem cells and multiple treatments. I’ve been in remission and been MRD several times. Just can’t seem to find the right Combination. I just started Teclistamab in June and it’s had reduced all my tumors and put me MRD negative I need to connect to those who have been on the trails for Teclistamab and have good results. I need some encouragement. Last year was rough. I’m at UAMS in Litlle Rock. Help is needed.

Hi all, diagnosed earlier this year with SMM at 42. Learning as much as I can about the journey I am now on and trying to not think about the potential outcomes. Glad to have these resources to rely on. Looking for others dealing with this at a younger age.

My husband was dxd in August and is just finishing cycle 3 of induction therapy at Mayo Clinic in AZ. They told us he would do 4-6 cycles before SCT. Markers have been moving in the right direction. Our 3 visit with hematologist is next week. At what point should we press for a more definitive timeline in terms of scheduling the transplant? At last visit, we were told we were looking at January 2024 most likely but it seems like this is somewhat flexible….or is it.? How close an analysis is done that may cause him to need a full 6 cycles of induction therapy? Can anyone tell me even more specific questions to ask hematologist at this point? For SCT, he will be transferred to a completely different medical team. We live close to clinic and are told SCT will be done outpatient. How challenging will it be for me as the caregiver?

Does anyone know of an organization that provides palliative or hospice care for MM patients in their homes?

Hi all! What are things that you would like to learn about in our 2024 educational webinars, specifically about kidney involvement and myeloma? What topics are important to you? What questions do you have for doctors? I want to make sure we are having educational events that are beneficial to you. Thanks in advance for your help!!

I am 30 days into the Talley chemo treatment. My Car-T lasted 22 months. So far I’m feeling fine. Other than losing my sense of taste, I’m doing good.

Looking for advise and guidance on reactions between suppliments and medicines. Can anyone recommend a medical internet site where you can impute your info on med's & sup's and get feedback ???

My husband had car-t 4 months ago. His platlets are still low and receives hemoglobin shots. He also has to go for weekly bloodwork and s once monthly iGG infusion. Doing good otherwise but we had many tough spots. Anyone else experience low blood numbers that took a while to come back? They said the car-t cells are still very active.