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Banklady
Multiple Myeloma Discussion • November 17, 2023
Clarification on 'Newly Diagnosed' Definition
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I am confused about the definition of "Newly Diagnosed Myeloma". Does this mean right after your diagnosis but no treatment yet? Or does it mean when you start your first line of treatment? (I am SMM since 10/2021, high risk 4:14, 2 docs say no treatment yet, which kinda worries me) Please explain definition of newly diagnosed myeloma.
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JazzyJoan
Multiple Myeloma Discussion • November 17, 2023
Experiencing GI Issues on Teclistamab?
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My ABECMA cart T lasted eight months and then I relapsed. I started Teclistamab in August 2023. I have had a loss of taste and appetite , ever since starting treatment Now,I have GI issues. All testing from GI doctor are negative. This is week 6 no solid poop. Am I alone ?
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violetLion
Multiple Myeloma Discussion • November 17, 2023
Getting Labs to Show Up in Cue Hub?
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Has anyone gotten their labs to show up in "cue hub"? My labs and health records are linked and downloaded. Still nothing shows
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GraceandMercy52
Multiple Myeloma Discussion • November 16, 2023
Coping With Loneliness and Lack of Support
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HI All! This is my first post In here because I really don't know what to write! When I was diagnosed in 2018 both of my parents had been deceased for years! What rest of the family one left on both SIDES are about 3-4 aunts an uncles! I have two adult children my daughter who lives with me who was still IN high school i a son who is married who I feel like doesn't support me! He has never been to A chemo appointment nor doc appt, with me!I have A best friend and A out of town Cousin who is also on list of my supporters! I just feel alone! When I reach out to support groups i haven't connected with anyone that I feel wants to keep IN touch, I don't know what's wrong with me that no one cares. I really feel alone! I used to literally my drive self to chemo 1 half hour each way to my Chemo, I Couldnt get a SCT because I did Not have soul who would stay with me for a month 24 hours A day which was Required! This was to me At The TIME life & Death! I think IM STILL harboring hurt, angry1 feelings to the few In my Life who I feel could have don't It mainly my kids....... I just can't get past this.. Why am I not loved enough? My parents never loved me so iguess In used to this.in there for every owe else emotionally & everyway! I down know. But what I do know is how much God loves me cause In I'm remission for five years on revlimin & dex! Thanks for listening!
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Robsi1
Chronic Myelomonocytic Leukemia Discussion • November 16, 2023
Coping With the Anxiety of Watch and Wait?
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Vor 1 Monat Diagnose CMML1. Die Onkologin meinte, derzeit Watch and Wait und ich soll im Jänner nochmals vorstellig werden. Bin aufgrund des Wartens voll durch den Wind. Meine Frage - Watch and Wait - ok?
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BentonMcCune
Multiple Myeloma Discussion • November 15, 2023
Tips For Transferring Care To A New State?
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I suppose this is more of a basic adulthood question, but I'm moving to a different state. Do I just call up the place I want to receive care at to establish a new doctor and they will get the electronic records transferred from my current myeloma doctor?