I am one year S/P transplant and have been on Pomalyst since January of this year. Has anyone experienced fogginess, brain fog, difficulty focusing with Pomalyst. I would categorize my level somewhere in the significant range, with some days a little better than others. There are days when I have trouble coming up with everyday words. I make mistakes when adding events to my calendar. I certainly do not feel like myself and am very frustrated. In speaking with my specialist about it, I questioned the need for a dementia or neurological examination and he did not feel my problems are dementia related but was ok with a neurological exam to rule out stroke or other issues. I’m wondering if I am the only one struggling with this. Thanks!

Hello All! Any experience a swollen tongue as part of your MM diagnosis?

What are # of days people have taken to collect 5 million stem cells. I will be back for 3 day tomorrow. Current total is 4.11 million with fewer collected today than yesterday

Durante 5 meses del 2017 tuve toda clase de análisis. Mis médicos buscaban un cáncer primario que ocasionó la metástisis en mis huesos, hasta que por fin en Mayo del 2017 con un estudio de positrones el diagnóstico llegó: Mieloma Múltiple y a partir de ahí tuve 4 tratamientos diferentes, orientados a una remisión que me permitió realizar el transplante autólogo de médula ósea a finales del 2019. Dos años de mantenimiento con Lenalidomida, después un año sólo, con buenos niveles hasta que en Junio del 2023, regresó el Mieloma. A sido muy doloroso. El tratamiento con Daratumumab durante 5 meses fue una experiencia muy desgastante, mi cuerpo fue muy atacado, perdí 20 kilos, baje mi densidad y no se erradicó el Mieloma. Dos meses de descanso y a partir de Mayo del 2024 se inició otro tratamiento con Lena, Dexa y Carfilzomib. Después de dos ciclos de quimoterapia semanal, mi cuerpo ha sido más receptivo, no resiento tanto los efectos secundarios, estoy mejor. Espero realizar el tercer ciclo para los análisis y ver si ya se alcanza la remisión y no necesitar los seis ciclos. Tengo mucha confianza de que así será, después de todo con el diagnóstico inicial me dieron una expectativa de 36 meses de vida. Ya llevo 7 años, es decir, 84 meses y quiero tener otros 7, 14 y por qué no, 21 años más. A mis 65 años diagnosticado cuando tenía 58, ya pude conocer a 2 nietas y un nieto, quiero poder verlos crecer como hasta el momento. Espero con ansia la evaluación. Sólo comentar que aparte de mi médico hematóloga, no recibo apoyo o ayuda de nadie más, sólo de mi esposa que es mi cuidadora y las experiencias de personas que están en una situación parecida. Lo que ha sido determinante es la actitud, nunca desfallecer y tener mucha confianza en que vamos a superar este obstáculo, como hemos superado muchos otros. Luis Alberto Yamamoto Vergar

I was diagnosed in May 2016, started induction in June, received a Stem Cell Transplant in November, and then Revlimid maintenance throughout 2017. It returned in January 2018 and was in weekly infusion/injection treatments through December 2022 but these failed to reduce the Myeloma. I was at 95% myeloma when I decided to give CAR T Cell therapy in March of 2023, and it worked to put me in remission for one year. An entire year without chemo has been wonderful. But the reality is in my case, it comes back. Still, research for myeloma has advanced over the years and new treatments are available for relapsed myeloma. I gained some strength over the year I was in remission to keep going.

This book is dedicated to all my fellow cancer patients. NEVER give up! NEVER give in!! As I look back on the last three decades, I am the luckiest person on the face of the earth! Beating life-threatening brain surgery (twice), cancer (three times), and morbid obesity (only once, but it was a long hard fight) has taught me the true meaning of words persistence and relentless. For more, please visit us on the web at; https://www.amazon.com/dp/B08QRB3H3G Thanks, Keith 3X cancer survivor

Diagnosed January 2018. I am fortunate to be so well for so long. I have never been close to a partial or complete response but I keep going to chemo and taking revlimid and my numbers stay steady.

Hello everyone, diagnosed in 2020, SCT in 2021 and been in MRD since then.

I'm here for be a Multiple Myeloma patient since October 2019, have four months of treatments, and have a SCT -Auto in October 2020, since that date I'm in remission. My name is Jose Delacruz, Baton Rouge, Louisiana . I'm almost 71 years old

I was diagnosed February 2024. I am finishing my 4th month of induction and have been told my numbers look excellent. I have 2 more months if induction therapy but my shots now will be every other week. I will then harvest me stem cells and go on maintenance therapy. My body was in so much pain in February, but I am feeling so good now. I still have fatigue but I can deal with that and rest when I need to. My doctor said live your life and that’s just what I am starting to do

I was diagnosed in October of 2016. A real big shock to say the least. I was started on velcade revlamid and dex. Didn't do great with the velcade so I was switched to kropilis and all my numbers started coming down. In January of 2018 I was MRD negative and have stayed the same since then. I feel good and hope ro continue on this path. I chose not to do the Transplant which I am happy about.

So we're sharing our creativity? I'm smouldering, 2 years now. I'm an art therapist and paint to relax. I'm over the moon, my art has been picked for a gallery in the biggest city to me Hull in UK.

I was diagnosed in May 2023. I am in my ninth month of induction therapy. My hobby is pottery handbuilding. I created this piece to represent me triumphing over multiple myeloma. The base represents myeloma, like a vessel from a ship wreak at the bottom of the ocean, covered with barnacles and debris. The fish is me: emerging from the wreak and swimming up to the surface!

Acting is my “therapy.” When I’m performing, I forget myeloma and feel like life is normal again. I’m blessed to have these opportunities to live my best life despite my diagnosis.