Good evening! In May of this year I was diagnosed with MGUS (with a low Mspike .37) and bone marrow biopsy results being small population of lambda-restricted plasma cells. My hematologist/oncologist said we would repeat blood work again in November. I just had blood work completed because I had to change hematologist/oncologist due to insurance. My results: no monoclonal protein; Beta 2 Globulin % High; Kappa Free Light Chain High; WBC low; RBC low; MCV high; Neutrophils low; Monocytes high; Neutrophil absolute low. All other labs were normal. Can anyone give me insight? Has anyone ever had a positive Mspike and then it be negative even withouth treatment? Any insight would be helpful! Thanks in advance.

Hi im 44 and have finished my induction DVrd 4 rounds. I have 2 kids under 3 and we want another. Life’s good at the moment I have never had any symptoms and I’m MRD -ve. Am I being foolish by postponing my stem cell transplant?

Hello, everyone, I'm stopping in to share my story in hope it might help someone to keep going. My CAR T Cell therapy, CARVYKTI, was in March 2023 and this coming month of September 2024 will be 18 months since I've been chemo free. I have had to receive IVIG immunotherapy every month since but that beats receiving chemo anyday. My note today is to share that I must resume treatment in September. It's back. 8 years fighting back. I am thankful for going on 18 months chemo free and am now researching to decide what treatment I should go on next. There are options, and for this I am also grateful. If possible, please share with me what treatment plan you're on or thinking about if the myeloma relapsed after CAR T cell therapy. It will help me in my decision making. Thank you, all, for listening, and for your help. Truly. Miriam

I HAVE HAD CHRONIC DIARRHEA SINCE CHEMO IN 2017. I CAN FIND NO CURE RECOMMENDED AFTER NUMEROUS CONSULTATIONS AND OUTREACH. ANYBODY ELSE HAVE THIS OR AM I UNIQUE. ART

Anyone here been on Venetoclax now? They are prescribing it for me? Wonder if my insurance will cover it since not FDA approved?