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Iliana • Admin
Multiple Myeloma Discussion • November 20, 2024
MagnetisMM Clinical Trial Info
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About 35,000 people will be diagnosed with multiple myeloma in the US this year. Consider joining a MagnetisMM clinical trial, for people with both newly diagnosed and relapsed/refractory multiple myeloma.      For more details about Pfizer’s MagnetisMM clinical trials, please visit: https://bit.ly/3ZfzQOF
Pfizer Clinical Trials | Official Participant Site

Pfizer Clinical Trials | Official Participant Site

Join us in the pursuit to change patients’ lives. Each and every person in a clinical trial plays a powerful role.

https://bit.ly/3ZfzQOF
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Foxy55
Multiple Myeloma Discussion • November 20, 2024
Interpreting a High K/L Ratio With MGUS?
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I was recently diagnosed with MGUS. My kappa reading was 55.592 mg/dl. My lambda was 3.89 mg/ml (0.389mg/dl)which gives a ratio of 142.91. Should I be overly concerned at this stage? This is all new to me so I'm somewhat worried. I had 3 covid 19 jabs in 2021.
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whitePuffin
Multiple Myeloma Discussion • November 19, 2024
KCD vs. CAR-T? Seeking Experiences with KCD Regimen
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Hello everyone, Had a transplant in July 2020 then Revlimid Maintenance for three years before relapsing in November 2023. Was then started on Pomalidomide/Dara/Dex in December 2023 --> partial response before unfortunately relapsing again less than one year later in November 2024. Now my oncologist wants to put me on Kyprolis/Cytoxan/Dex. Anyone had any experience with this regimen? Anyone experience a long remission on this regimen? Debating on whether to try this regimen vs. going straight to CAR-T or bispecifics. Thank you and God bless each and everyone of you! This forum has been so helpful in my journey.
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JPP2023
Multiple Myeloma Discussion • November 17, 2024
Managing Muscle Cramps On Revlimid - Tips?
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Does anyone have experience with muscle cramps, mostly in the calves but other places as well? I was diagnosed September 2023 and had ASCT in January 2024. I am on maintenance therapy of daily Revlimid and monthly Daratubumab. I am tolerating all this well but the muscle cramps are terrible. Any ideas or remedies? Thanks
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1finegrandma
Multiple Myeloma Discussion • November 16, 2024
Experiencing Darzalex Skin Pain: Does It Subside?
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In a previous thread I mentioned I would be starting Darzalex Faspro. I already take Pomalyst 3mg for 21 days on and 7 off so the Darzalex is new to me. I received my first shot 5 days ago and yesterday I started experiencing skin sensitivity mostly under one arm and my rib cage area front and back. I don't have rash but my skin hurts. May question is has anyone else experienced this and did it subside with time? I would also like to hear about other side effects and did they improve over time. Thank you.