Your Feed

Filter by
See content from
Back to the latest
Avatar
Isaac
Multiple Myeloma Discussion • December 29, 2024
Sharing Experiences: Venetoclax Maintenance Post-ASCT?
AI-generated title
Hello, I have translocation 11;14 and responded exceptionally well to venetoclax prior to ASCT. After ASCT my doctor wants to continue me on venetoclax as maintenance therapy. Has anyone had a similar experience; anyone used venetoclax and dexamethasone for maintenance? Was it successful? Thank you 🙏
Avatar
Krose
Multiple Myeloma Discussion • December 28, 2024
Sharing VA Disability Info for Veterans
AI-generated title
Hello All, Hope you are doing well. If you served in the military oversees, you are likely eligible for VA Disability benefits as they now consider MM a presumptive condition due to toxic exposure. I filed my claim in early December and it was just approved. MM gets an automatic 100% rating for 5 years and you also get VA health care benefits. Message me if you want more information on what we included in the claim. https://www.va.gov/disability/
VA disability compensation | Veterans Affairs

VA disability compensation | Veterans Affairs

VA disability compensation (pay) offers a monthly tax-free payment to Veterans who got sick or injured while serving in the military and to Veterans whose service made an existing condition worse. You may qualify for VA disability benefits for physical conditions (like a chronic illness or injury) and mental health conditions (like PTSD) that developed before, during, or after service. Find out how to apply for and manage the Veterans disability benefits you’ve earned.

https://www.va.gov/disability/
Avatar
dtgeistmanranch
Multiple Myeloma Discussion • December 27, 2024
Managing Insomnia & Constipation on Revlimid?
AI-generated title
Good day to all! I’m 28 months post SCT for stage 1 MM. currently on Revlimid 10mg 14 days out of 28 day cycle. This may seem trivial to some, but not to me.. I have had a daily problem with insomnia and constipation. I follow all the recommended sleep hygiene practices and follow a good diet and get exercise. I’ve tried many supplements for both of these conditions. Thus far, I continue to be plagued by both problems. I’m looking for new ideas that might help me. God bless you all.
Thumbnail for KarMMa Study: Immune Profiling in CAR-T Therapy for Myeloma | Bruno Paiva, PhD | #ASH24
Playlist: ASH 2024

KarMMa Study: Immune Profiling in CAR-T Therapy for Myeloma | Bruno Paiva, PhD | #ASH24

Video details & playlist
Thumbnail for MRD Status in Myeloma: Insights on Changes During Maintenance | Ross Firestone, MD, PhD | #ASH24
Playlist: ASH 2024

MRD Status in Myeloma: Insights on Changes During Maintenance | Ross Firestone, MD, PhD | #ASH24

Video details & playlist
Thumbnail for CAR-T Therapy (ide-cel) Consolidation for Suboptimal ASCT Responders | Barry Paul, MD | #ASH24
Playlist: ASH 2024

CAR-T Therapy (ide-cel) Consolidation for Suboptimal ASCT Responders | Barry Paul, MD | #ASH24

Video details & playlist
Thumbnail for Myeloma 11 Trial: Carfilzomib Quadruplet Enhances Overall Survival | Charlotte Pawlyn, MD | #ASH24
Playlist: ASH 2024

Myeloma 11 Trial: Carfilzomib Quadruplet Enhances Overall Survival | Charlotte Pawlyn, MD | #ASH24

Video details & playlist
Thumbnail for Adding a FLT3 Inhibitor May Improve Chemo Efficacy for Newly Diagnosed AML | Musa Yilmaz, MD | #ASH24
Playlist: ASH 2024

Adding a FLT3 Inhibitor May Improve Chemo Efficacy for Newly Diagnosed AML | Musa Yilmaz, MD | #ASH24

Video details & playlist
Avatar
Rosaida
Multiple Myeloma Discussion • December 26, 2024
Starting Revlimid: Experiences After a Good Start?
AI-generated title
Hello everyone, wishing you all the best in your health! I’m 53 years old and was diagnosed with SMM a year ago, but it recently progressed with a lesion in my sternum, which isn’t painful. It has now been declared active MM, and I started treatment two weeks ago with Dexamethasone, Prednisone, Bortezomib, Daratumumab, Zometa, and preventive medications for side effects. I’ve never experienced significant related pain anywhere in my body. Prednisone has been giving me lots of energy and appetite. I feel great. Today, I’m starting Revlimid, which is the one that concerns me. I hope I can tolerate it just as well. I’m preparing for an autologous transplant in 4 months. I’ve read many concerning stories and others that are not so bad. I have high expectations and hope not to be disappointed along the way. I know it won’t be as easy as it has been so far, but I hope it will at least be manageable. Has anyone else done so well at the beginning and then experienced a change? If I’ve done well with everything so far, can I have good expectations with Revlimid? Looking forward to hearing from you all!
Avatar
BruceFan76
Multiple Myeloma Discussion • December 25, 2024
COVID with SMM: Impact on Progression?
AI-generated title
One of my Christmas gifts this morning was Covid! Contracted, most likely, at a public holiday party last Friday night with about 150 people. So, I’m wondering as someone mid-high risk SMM how the COVID virus impacts progression, if at all? And any other residual impacts from COVID related to SMM. Thanks! Best wishes for a great holiday and New Year everyone!
Thumbnail for Combination of Selinexor, Pomalidomide, & Dexamethasone for RRMM | Muhamed Baljevic, MD | #ASH24
Playlist: ASH 2024

Combination of Selinexor, Pomalidomide, & Dexamethasone for RRMM | Muhamed Baljevic, MD | #ASH24

Video details & playlist
Thumbnail for Etentamig with Dexamethasone: Promising 2nd Line Therapy for RRMM | Muhamed Baljevic, MD | #ASH24
Playlist: ASH 2024

Etentamig with Dexamethasone: Promising 2nd Line Therapy for RRMM | Muhamed Baljevic, MD | #ASH24

Video details & playlist