Your Feed

Filter by
See content from
Back to the latest
Avatar
AP
Multiple Myeloma Discussion • March 4, 2025
Age at Diagnosis Statistics?
AI-generated title
Do we have data or a diagram that shows percentage age-wise distribution of people who were diagnosed with SMM or MM?
Avatar
DIahanna • Admin
Multiple Myeloma Discussion • March 3, 2025
Financial Aid & Support Resources
AI-generated title
Healthwell foundation has grants available for Cancer Home Care Services via phone application only as well as grants for AML, CLL, MCL, MM -Medicare Access, Oncology Caregiver Behavioral Health Fund go to: healthwellfoundation.org. Support Near Me is a website provided by an organization called Aunt Bertha, a Public Benefit oCorp (also doing business as find help and findhelp.org, that provides a searchable list of local services that you may find helpful in addressing your needs. Access to Support Near Me is licensed by Merck solely as a convenience for patients and caregivers. CancerCare at copay.org has grants available for: ALL, AML, Cancer Genetic Genomic Testing, Social Needs Assessment & Intervention Fund, Myelodysplastic Syndromes.
Avatar
DIahanna • Admin
Multiple Myeloma Discussion • March 3, 2025
Financial Aid & Grant Resources
AI-generated title
Healthwell foundation has grants available for Cancer Home Care Services via phone application only as well as grants for AML, CLL, MCL, MM -Medicare Access, Oncology Caregiver Behavioral Health Fund go to: healthwellfoundation.org. Support Near Me is a website provided by an organization called Aunt Bertha, a Public Benefit oCorp (also doing business as find help and findhelp.org, that provides a searchable list of local services that you may find helpful in addressing your needs. Access to Support Near Me is licensed by Merck solely as a convenience for patients and caregivers. CancerCare at copay.org has grants available for: ALL, AML, Cancer Genetic Genomic Testing, Social Needs Assessment & Intervention Fund, Myelodysplastic Syndromes.
Avatar
magentaFlamingo
Multiple Myeloma Discussion • March 3, 2025
Holistic Care or Supplements: Experiences?
AI-generated title
Hello MM patient here, 3 years now. Failed SCT, so basically on a maintenance treatment plan keeping things stable but haven’t reached remission yet. My question, Is anyone here doing a holistic approach or taking any herbs or natural supplements? And how is it going if so.
Avatar
Onie1027
Multiple Myeloma Discussion • March 3, 2025
Managing Swollen Hands at Night - Any Tips?
AI-generated title
Good morning i am also a myeloma patient for about two years,I still have to learn a lot I'm has anyone have problems with there hands my hands are swollen all night I have to constantly rub them or get up and run hot water or something on them do anybody know what's good for that?
Avatar
HealthTree User
Primary Mediastinal B-Cell Lymphoma Discussion • March 2, 2025
Sharing Your Diagnosis Journey?
AI-generated title
Is anyone navigating a diagnosis of Primary Mediastinal B cell Lymphoma who doesn't mind sharing about their journey?
Avatar
Lindsay
Multiple Myeloma Discussion • March 2, 2025
Managing Dara/Velcade Stomach Upset?
AI-generated title
Hello everyone, Does anyone have any suggestions on what works best for the stomach upset mess off the dara/velcade shots? Home remedies or supplements or anything in general? Thank you?
Avatar
kmburke60016
Multiple Myeloma Discussion • March 1, 2025
Lung Nodules After SCT: Sharing Experiences?
AI-generated title
Hello all. I was diagnosed just under a year ago. Had to have a spine surgery to stabilize around my T1, which was destroyed by the myeloma. I'm about 110 days past my SCT. Had a recent CT scan of the thoracic and cervical areas, which revealed some changes and also some 3mm nodules in my left lung. Has anyone had experience with this?
Avatar
Michael
Myelodysplastic Syndromes Discussion • February 28, 2025
Do I have cancer
Do I have cancer
Avatar
Isaac
Multiple Myeloma Discussion • February 28, 2025
Severe Itching on Venetoclax: Anyone Else?
AI-generated title
Hello, has anyone experienced severe itching and skin irritation (looks like hives) under the Armpits and groin area while using venetoclax? I'm currently experiencing this, and I saw my non-myeloma doctor and she said it was fungus, but I think it's an allergic reaction to venetoclax. The itching is starting to happen all over my body now, but especially my back, neck, armpits, stomach, and groin areas. If you've experienced this, could you please share how you went about getting it resolved? Thank you 🙏
Avatar
kenlevy
Multiple Myeloma Discussion • February 28, 2025
LLS Financial Aid Programs Now Available
AI-generated title
LLS has opened up the Urgent Need Program: Urgent Need Programs provide assistance for non-medical expenses including rent, mortgage, lodging, utilities, childcare, elder care, food, transportation, car repair, car insurance, phone service, and acute dental work related to treatment. Eligible patients receive a $500 grant. Applications must be submitted by a member of the patient’s care team over the phone at (877) 557-2672 or via the online portal. For general information, eligibility criteria, and covered expenses, please visit the webpage at www.LLS.org/urgentneed. Also open: Patient Aid Program ​provides a one-time $100 stipend to eligible blood cancer patients to help offset non-medical expenses. Medical Debt Case Management Program ​helps patients address financial concerns, identify resources, assist with insurance plan evaluation, and navigate insurance benefits, denials of care, and out-of-pocket costs. Veterans Dental Partnership provides assistance to Veterans with blood cancer to access dental care to begin lifesaving therapy or as a consequence of therapy. All expenses for the required dental care will be covered, as long as funding is available. Local Financial Assistance Programs provide assistance for non-medical expenses including transportation, housing, utilities, child/elder care, food, clothing, phone, acute dental work related to treatment. Eligible patients receive a $500 grant.