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NormaL1
Multiple Myeloma Discussion • July 9
Insurance drug coverage
When drug companies can change their formularies any time of the year, how can I choose the right plan? A drug may be covered when I choose the plan and it may get dropped when I need it.
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marysavarese
Multiple Myeloma Discussion • July 8
Mary S
I wiil be beginning Darcelex Faspro shortly. Has anyone had bad reactions??
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Dadof5
Multiple Myeloma Discussion • July 6
Revlimid/Lenalidomide maintenance
Hi all, diagnosed at 58 had ASCT in early 2020. Have been on maintenance since-roughly 6 years. Am not “definitively MRD negative “. Curious has anyone been on lenalidomide maintenance much longer than me? Have you had any noticeable side effects from long term treatment? I am currently having no real issues (that I know of)with the med but am starting to question whether I should continue or consider a lower dosage. There doesn’t seem to be any long term studies on long term usage. Thank you in advance
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Rauchka60DAF
Myelodysplastic Syndromes Discussion • July 4
Blood transfusion reactions.
I have MDS and CMML……i amhetting CBC weekly. About every three weeks a get two units of red blood cells. I have several antigens and antibodies so it is difficult to to get a matching donor. I have been getting incompatable blood with the doctor signing off and have had no issues until the last two transfusioms. I am Ok getting the blood at the hospital but the next morning I get violent shaking and a temp of about 102. We have changed my cross and match to Mondays to see if a donor can be found that matches. So I can get blood a little later in the week. What happens if no match can be found??? PS. NO CHEMO has helped all failed.
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Annborell
Multiple Myeloma Discussion • July 3
Cevostamab trials
Has anyone started a trial with Cevostamab? If so how is it going and what health center are you receiving treatment?
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slhenk9
Multiple Myeloma Discussion • July 3
trial drug
has anyone yet started the trispecific drug...JNJ vs taclisamab....and is there anything you can do to protect your taste buds
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