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yellowFox
Multiple Myeloma Discussion • February 21
Can someone help me with my question?
What does it mean when doctors say 80% partial response, after stem cell transplant. Does this mean the transplant did not work?
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XimenaG • Admin
Chronic Lymphocytic Leukemia Discussion • February 20
New FDA Approval US FDA Approves New Fixed-Duration Combination Treatment for Patients with CLL
🚨 Breaking News The U.S. FDA has approved acalabrutinib (CALQUENCE®) from @AstraZeneca in combination with venetoclax as the first all-oral, fixed-duration (14-month) regimen for adult patients with chronic lymphocytic leukemia (CLL) and small lymphocytic lymphoma (SLL). In the AMPLIFY clinical trial, 77% patients treated with acalabrutinib and venetoclax were progression-free at 3 years. These patients had a 35% reduction in the risk of disease progression or death. Read the full article here:https://healthtree.org/cll/community/articles/26-acalabrutinib-venetoclax-for-cll-sll?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
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XimenaG • Admin
Chronic Lymphocytic Leukemia Discussion • February 20
Live Event: A CLL Patient's Story & Q&A
Some stories don’t just inspire, they stay with you. On February 26, join us for “Unshaken: Navigating Blood Cancer with Jason Mook,” a special event featuring Jason’s powerful story of living with CLL and how education and community helped him and his family navigate diagnosis and care. 🎥 We’ll watch a featured video together 💬 Then Jason Mook will join us live to answer your questions in a Q&A 📅 Feb 26, 2026 | 7:00–8:30 PM EST 🔗 Register here: https://healthtree.org/myeloma/community/events/feb26-watch-partu-unshaken-documentary?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general Bring your questions or add yours in advance so we can prepare with Jason. #BloodCancer #CLL #PatientStories #CancerSupport #PatientEducation #CancerCommunity #WeCareWeCure #HealthTree
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XimenaG • Admin
Multiple Myeloma Discussion • February 20
Sharing a Blood Cancer Story & Live Q&A
Some stories don’t just inspire, they stay with you. On February 26, join us for “Unshaken: Navigating Blood Cancer with Jason Mook,” a special event featuring Jason’s powerful story of living with CLL and how education and community helped him and his family navigate diagnosis and care. 🎥 We’ll watch a featured video together 💬 Then Jason Mook will join us live to answer your questions in a Q&A 📅 Feb 26, 2026 | 7:00–8:30 PM EST 🔗 Register here: https://healthtree.org/myeloma/community/events/feb26-watch-partu-unshaken-documentary?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general Bring your questions or add yours in advance so we can prepare with Jason. #BloodCancer #CLL #PatientStories #CancerSupport #PatientEducation #CancerCommunity #WeCareWeCure #HealthTree
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1finegrandma
Multiple Myeloma Discussion • February 19
Bactrim side effects/hair loss
I started taking Bactrim the early part of September 2025 after my CAR T and have been on it continuously since. I have started experiencing hair loss (at a more rapid rate than usual) I am 66 years old woman and have had thinning over the years. I was wondering if anyone else has experienced this? I have my 6-month CAR T follow up next week. I may request that I be taken off it. Please let me know and if it grew back once stopped.
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Rbuttles64
Multiple Myeloma Discussion • February 19
Medicare vs group health insurance for Car-T coverage.
Hello All, Is a group health insurance plan more likely to cover Car-T as apposed to Medicare? If anyone has personal experience or knows from others experiences and would like to share, thank you in advance. I’m trying to decide whether to stay on my husband’s health insurance or switch over to Medicare now that I am 65. Best, Robin
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apsmile
Myelofibrosis Discussion • February 18
Northeast Ohio
Hello to all the warriors. I'm looking for people living with a MPN in northeast Ohio, specifically Cleveland and the surrounding areas. I'd like to start a support group, unless you know of one. Let me know.
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Donnabaxter
Chronic Lymphocytic Leukemia Discussion • February 17
Mouth Sores
Can anyone recommend a treatment, supplement or medicine to help eliminate constant mouth sores? They are so painful and seem to be getting worse. Thank you.