They are introducing Total Assist which has some great financial opportunities for some of us. Check out their website at www.uniting.patientadvocate.org for more details.

We’re heading to the mountains for a cause that unites us all. 🏔️🧡 The 2026 HealthTree Challenge: Hike & Wellness is heading to Vail, CO, this October 15–17! This transformative experience brings together patients, caregivers, and supporters for a 3-day journey of personal triumph while fostering connections that will last a lifetime. Joining the Challenge team is a commitment to your personal wellness, it strengthens our blood cancer community, and raises awareness and funds for life-changing research. Every step on that trail is a step toward a cure. We hope you join us! ✨ 📩 Email Taryn at taryn@healthtree.org to learn more or join our interest list here: https://give.healthtree.org/event/healthtree-challenge-hike-and-wellness-2026/e775590?c_src=socialmedia

A cancer diagnosis impacts more than physical health. It can deeply affect emotional well-being, too. As part of Mental Health Awareness Month, join Dr. Meagan Dwyer for a compassionate conversation on practical tools to help patients and caregivers manage stress, anxiety, and the emotional challenges of cancer. Whether you are newly diagnosed or living with cancer long term, this webinar offers evidence-based strategies to help you feel more supported and in control. 📅 May 13 | 8 PM EDT 🎥 Can’t attend live? Register to receive the recording. Register: https://healthtree.org/blood-cancer/community/events/may26-mental-health-tools-blood-cancer?utm_source=social-media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

A cancer diagnosis impacts more than physical health. It can deeply affect emotional well-being, too. As part of Mental Health Awareness Month, join Dr. Meagan Dwyer for a compassionate conversation on practical tools to help patients and caregivers manage stress, anxiety, and the emotional challenges of cancer. Whether you are newly diagnosed or living with cancer long term, this webinar offers evidence-based strategies to help you feel more supported and in control. 📅 May 13 | 8 PM EDT 🎥 Can’t attend live? Register to receive the recording. Register: https://healthtree.org/blood-cancer/community/events/may26-mental-health-tools-blood-cancer?utm_source=social-media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

For those of you who have received or are considering applying for grants for copay, deductible, co insurance and premium reimbursement there are some great changes coming with Total Assist affective July 1. Some grants have been expanded and nothing has been reduced.

Has anyone from our group done a parasite clease? If so, which treament did you use?

I'm going to be switching from generic Lenalidomide to original Revlimid. Does anybody have information on the cost difference?

I had CAR-T for multiple myeloma in July, 2024, and I have been in remission since. However, after developing many ugly sores on my leg early this year, I was diagnosed with Car T associated anaplastic large cell cutaneous lymphoma with cytotoxicity and rapid propagation. I am being treated at Moffitt for this. To say this is rare is an understatement. There are approximately 25 cases in existence. Period. It is a very serious, if not grim, diagnosis. Due to it's rarity, there is scant data on survivorship. I would like to plan out the time I have with family events, but I have no idea what the range of my survivorship might be. Has anyone received a similar diagnosis, or have community information on what my famiy and I might expect? Thanks