Your Feed

Filter by
See content from
Back to the latest
Avatar
JennG
Multiple Myeloma Discussion • August 7
Alternative support
Hello! I’m scheduled for SCT in September. I’m working with a PT to be as fit as possible and feel good about that but I’m wondering if anyone has found an alternative treatment that supports their care. I want to feel like I’m doing everything in my power to get myself back to full health. Thanks!
As we continue building our testicular cancer community, we’d love to learn from your experiences and insights. We’ve put together a few questions that we hope will spark conversation and help all of us better navigate life with testicular cancer. Feel free to answer one question, a few, or all of them, whatever you’re comfortable sharing. Every perspective is valuable, and we’d love to hear from you. 1. What is one thing you wish someone had told you when you were first diagnosed with testicular cancer? 2. What was the hardest part of your testicular cancer journey that you didn’t expect? 3. How did you decide which treatment option was right for you?
As we continue building our brain cancer community, we’d love to learn from your experiences and insights. We’ve put together a few questions that we hope will spark conversation and help all of us better navigate life with brain cancer. Feel free to answer one question, a few, or all of them, whatever you’re comfortable sharing. Every perspective is valuable, and we’d love to hear from you. 1. What is one thing you wish someone had told you when you were first diagnosed with brain cancer? 2. What was the hardest part of your brain cancer journey that you didn’t expect? 3. How did you decide which treatment option was right for you?
Avatar
Todd Foster • Admin
Kidney Disease Discussion • August 7
We’d love to learn from your experiences and insights
As we continue building our kidney cancer community, we’d love to learn from your experiences and insights. We’ve put together a few questions that we hope will spark conversation and help all of us better navigate life with kidney cancer. Feel free to answer one question, a few, or all of them, whatever you’re comfortable sharing. Every perspective is valuable, and we’d love to hear from you. 1. What is one thing you wish someone had told you when you were first diagnosed with kidney cancer? 2. What was the hardest part of your kidney cancer journey that you didn’t expect? 3. How did you decide which treatment option was right for you?
Avatar
Todd Foster • Admin
Lung Cancer Discussion • August 7
Welcome to HealthTree's Community site for patients
HealthTree’s community posts are a community of fighters, survivors, and supporters dedicated to helping you navigate every step of this journey. Post or ask the community a question, lean on our collective strength, share your victories (big or small), and let’s take this one day at a time, together.
Avatar
Todd Foster • Admin
Bladder Cancer • August 7
We’d love to learn from your experiences and insights
As we continue building our bladder cancer community, we’d love to learn from your experiences and insights. We’ve put together a few questions that we hope will spark conversation and help all of us better navigate life with bladder cancer. Feel free to answer one question, a few, or all of them, whatever you’re comfortable sharing. Every perspective is valuable, and we’d love to hear from you. 1. What is one thing you wish someone had told you when you were first diagnosed with bladder cancer? 2. What was the hardest part of your bladder cancer journey that you didn’t expect? 3. How did you decide which treatment option was right for you?
Avatar
Todd Foster • Admin
August 6
Welcome to HealthTree's Community for patients
HealthTree’s community posts are a community of fighters, survivors, and supporters dedicated to helping you navigate every step of this journey. Post or ask the community a question, lean on our collective strength, share your victories (big or small), and let’s take this one day at a time, together.
Avatar
Todd Foster • Admin
August 6
Welcome to HealthTree's Community for Patients
HealthTree has been working in the blood cancer world since 2018. We are now moving to other cancer types, and we believe that while cancer is a word, it isn't your whole story. This is a community of fighters, survivors, and supporters dedicated to helping you navigate every step of this journey. Post and lean on our collective strength, share your victories (big or small), and let’s take this one day at a time, together.
Avatar
slhenk9
Multiple Myeloma Discussion • August 6
pain management when on a trial study drug
any suggestions for pain management, my husband is on morphine right now but that doesn't always help completely...looking for suggestions
Avatar
dshaffer11
Multiple Myeloma Discussion • August 5
Dr. James Berenson not effective for me
When I was first diagnosed with MM, I met with an Oncologist at my local cancer center and then through another article about best multiple myeloma doctors came across Dr. James Berenson in LA. I was able to get an appointment fairly quickly which maybe should have been a red flag. Anyway, I met with Dr. Berenson and decided to follow his protocol for treatment. The local oncologist when seeing the plan commented that he was recommending using a chemo agent doxorubicin that had been around a long time. I was also to get 40 mg of Dex twice a week and Velcade. The long and short of it is that it was not an effective treatment for me and once we backed off on the Dex due to the side effects, my myeloma numbers starting going the in the wrong direction telling me that the other medications weren’t doing much if anything. For me Dr. Berenson’s protocol was not effective and set my recovery back. In hindsight I wish I had listened to the other oncologist who was recommending a current standard of care protocol.
Avatar
jraverhoff
Chronic Myeloid Leukemia Discussion • August 4
MECOM Rearrangement
Has anyone seen data that suggest third generation TK Inhibitors have the same efficacy as second generation TK Inhibitors when treating CML with MECOM Rearrangement?
Avatar
Suemcenteegmailcom
Multiple Myeloma Discussion • August 4
Immunotherapy induced colitis
It appears I have gotten colitis from a bispecific. Anyone else experience this? If so how was it treated?
Avatar
KarThom
Multiple Myeloma Discussion • August 3
CAR-T Cell Therapy
My husband has had Multiple Myeloma since 2008. We are scheduled to go to the University of Arkansas Multiple Myeloma Center to have his T cells extracted this week. He will have the Car-T Cell Therapy with Carvykti in September. What advice would you give to him or myself, as his caretaker during the upcoming procedures? Thanks!