I’m newly diagnosed with smoldering multiple myeloma last week. I’ve been through a myriad of testing and have a M spike that is riding too quickly I’m told. This is incredibly nerve wracking like I’m a ticking time bomb.? How do you handle this ?

I am getting an MRI at the end of this month as about 13 years ago the Dr. said I was ok and then I had an MRI and I had multiple Myeloma. My new cancer Dr. says I don’t need an MRI as my bloodwork shows I am in remission, but I haven’t had an MRI for two years and want to make sure. I was on Revlimid but have been off of it for a year now. My old Dr. wanted me to stay on it, but my new Dr. didn’t think I needed it. I moved or I wouldn’t have changed Dr.

Diagnosed with MM early 2019. 1st Oncologist had me on Velcade. Received excessive amounts of Velcade & experienced severe Neuropathy early on. Decided after 3 weeks to change Oncologist TG!! My New Oncologist recognized the damage bases on my 1st Chemo Treatments. He immediately aborted my current treament & began a series of Kyprolis Treatments. What a life saver!! in November of 2019 I went through a Stem Cell Transplant. It seemed to have worked for the 1st Month, soon after traces of MM were not at bay. Long story short, it was discovered I had a bad Chomosome, yup, P17 deletion, which began allowing the bad cells to enter in once again. Longer story short, im on now & Oral Med of 3mg of Ninlaro & has been wonderful, all my Markers are at bay & consider in a remission state! Thats my story for now & I'm sticking to it!!!

I have been through 2 SCT’s and have been in remission for 9 years. I went into remission after my first one. However, my transplant team had a tandem protocol based on my age and profile. I do not take any medications related to my MM. I follow the directions of my medical team to the letter. I’m here to support and help anybody who has questions. Stay strong! Stay positive!

I’m working with an oncologist who is looking at the connection between MM and diet. After refraining from animal proteins 6 days and today having two boiled egg whites for breakfast Plus tilapia for lunch, I feel awful. I felt much better excluding animal proteins.

For constipation, my MSK oncologist recommended otc magnesium citrate, produce or maybe a stool softener.

What are you using for constipation?

Whole Genome Sequencing testing experience I participated in the Whole Genome Sequencing test that Predicts Biosciences ran here through Healthtree and got results that were startling, to the point of "Failed the test successfully." My result came back with "Test failed because <50 Circulating Tumor Cells detected in 21.4 million." That works out to less than 0.000002% zombie cells in my blood stream. My specialist is on mat leave until next month and my local was quite skeptical saying it was likely an "absence of evidence" rather than an "Evidence of absence." In other words, he's not convinced of the efficacy and accuracy of the test. Of those here that did the test, what were your results and what did your local/specialist think of the test and your results? Thanks.

Has anyone had IgA Lambda myeloma with a a good prognosis?

Just started Kryopolis .how long does it take to start seeing numbers go down?

Has anyone not done maintenance chemo after stem cell transplant?

Has anyone not done maintenance chemo after stem cell transplant?