Talvey. Week 11. Starting in the first few weeks, I quit sweating. It's very dangerous. Has anybody else had this side effect? I've now talked to 6 people that experienced this side effect. When I called Talvey and the federal adverse reaction recorders, they both said they had never heard of that before. The Talvey lady acted like she thought it was not the Talvey causing the no sweating situation. One reported side effect is anhidrosis, a condition where the body does not sweat normally or at all. Call in and report all of your side effects. To your Dr, the manufacturer and the adverse reactions people. https://www.google.com/search?q=talvey+no+sweating&oq=talvey+no+sweating+&gs_lcrp=EgZjaHJvbWUyBggAEEUYOTIHCAEQIRigATIHCAIQIRigATIGCAMQRRg8MgYIBBBFGDwyBggFEEUYPTIHCAYQIRigATIHCAcQIRigATIHCAgQIRirAtIBCTE2MDcxajBqNKgCArACAQ&client=ms-android-verizon-us-rvc3&sourceid=chrome-mobile&ie=UTF-8

My husband had multiple myeloma but has been in remission since 2017. He had a stem cell transplant in 2017 and had been on Revlimid since after having his transplant. Just recently the oncologist he seen, took him off the Revlimid and told him that now he will just come in every 3 months for blood work instead of every month. We are concerned because we were told back when he had the cancer that he would be on chemo for the rest of his life because this is a cancer that will come back. We just need to make sure this the right decision.

I was just diagnosed July first. I have not had any treatment as of yet but a PET scan and 2 bone marrow biopsies. I am having more labs before seeing my specialist September 2nd. The doctor discussed induction treatment that would probably be for 3 months. Maybe a bone marrow transplant afterwards. I have only one issue at this point… headaches! Did anyone have a similar experience?

Has anyone had trouble getting Teclistamab and Revlimid taken together approved by the insurance company? I was on Teclitamab and my doctor wanted to add Revlimid for a better outcome. There were a few weeks where I was on both before the insurance company said the combination is denied. During that time my kappa number dropped 30% so I think this is a great solution for me. I am looking for any information I can give to the insurance company that this is an accepted combination for treatment of MM. That maybe it is more common than the insurance company believes. Thank you.

Has anyone had any experience with secondary cancers caused by long term use of Revlimid ? 1) What kind of cancer was caused 2) after how many years 3) how was it treated Thanks

Diagnosed with stage 3a multiple myeloma eight years ago. Had back surgery to replace t12 vertebrae with rods and spinal fusion. Then chemotherapy and radiation followed by stem cell transplant then Revlamed which caused me to have myeloma followed by surgery. Then had Car t transplant followed by Talvey I’m on now. Doing ok so far. That’s my journey with MM.

Are there ever any Healthtree events in Rockford, Illinois?

Diagnosed MM in May 2025, week 10 of 16 DVDR, lab work shows treatment is working great. Has anyone experienced ankles swelling? Doctor prescribed Lasix, which helps until next treatment.

I was diagnosed with MM 8 months ago. Ay that time, my spine had already collapsed with 12 vertebrae fractured. Some of the fractured vertebral bodies do not have lesions. I do not have recent bone density number, but my bones are translucent in X ray images. I have been on IV Zometa since February 2024, 4mg monthly. But I have been experiencing progressive compression of the spine and new fractures. Also, my ALT has been dropping steadily one month after the start of Zometa. Right now the reading is 37, a little below the normal range. Does anybody out there has similar experience? Has anybody used different drug for bone health? Thank you in advance for sharing.

I was diagnosed with MM in 2023 by a bone marrow biopsy. My Iga and lambda numbers were very high but my oncologist did not order the test that types the MM, he just confirmed my assumption that I had Iga lambda myeloma. I changed hematologists and she did order further testing and scans that hadn’t been done and said that according to testing I actually had IgG kappa myeloma. She has never explained to me when I’ve asked, how I can have elevated Iga and lambda values and actually be IgG kappa. Has this ever happened to anyone? Does it sound reasonable? I was also diagnosed with kappa restricted Non-Hodgkin Lymphoma later in 2023. Could that skew the results? No one has been able to give me a straight answer. I even paid for a second opinion from Stanford and still it’s vague.

60 yo high risk 6 months post transplant and my m-protein is still at 0.2, anyone else have same experience?? Was told may take several months to clear and also told may never clear. Thoughts??