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XimenaG • Admin
Multiple Myeloma Discussion • February 27
Ask an Expert: Live Q&A on Myeloma Innovations
💜 Ask the Expert: Innovations in Multiple Myeloma Join us during Multiple Myeloma Awareness Month for a live Q&A webinar with DR. Craig Cole, a leading expert in multiple myeloma care. This interactive session is focused entirely on patient and caregiver questions, covering the latest innovations in myeloma treatment, evolving care strategies, and what these advances mean for people living with myeloma today. 🗓 March 6, 2026 ⏰ 3:00 to 4:00 PM EST Can’t attend live? All registered participants will receive the recording. 👉 Register here: https://healthtree.org/myeloma/community/events/mar26-ask-your-questions-dr-cole?utm_source=social_media&utm_medium=meta&utm_campaign=mmam2026&utm_content=general
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TimJohnson
Multiple Myeloma Discussion • February 26
Lambda Light Chains spiking??
Good morning MM Warriors and Heroes (caregivers). I've been on maintenance of Dara once a month and Pomalyst 1mg 28/28 since Halloween and have been bubbling along at a low simmer. All my numbers move up or down slightly every month but all within or very near normal range. NO CRAB or other issues or side effects. Until this month's light chains result. My lambda light chains have been hovering around 9mg/l +/- 2mg/l since early last year. This week's result more than doubled from 11.56 mg/l last month to 24.3 mg/l this month. Kappas have been behaving themselves in the 6mg/l range - all within "normal" ranges. We're still waiting on the SPEP result (it's been a steady 0.9 since September) to see if anything changed drastically there. I see the local tomorrow for my regular visit and treatment and hopefully get more information and context. The "It's still within normal range" email from the nurse wasn't all that reassuring. Has anyone else seen or experienced radical jumps in their light chains when nothing else (treatment or results) stays the same? Thanks.
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Pennyoly
Multiple Myeloma Discussion • February 25
Scarlisa Tx
Has any suffered more infections while taking this treatment?
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Debbie
Multiple Myeloma Discussion • February 24
Breakfast ideas
Hello everyone. I am looking for suggestions for breakfast items for my Loma patients. Any recommendations would be greatly appreciated. Thank you in advance.
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Janeth
Multiple Myeloma Discussion • February 24
I am overwhelmed
Hello I am new, not very good with technology or English. My name is Janeth, my husband was diagnosed with Multiple Myeloma last August, but he knew they was a possibility for the past two years but decided not to tell me Until the Dr said it was . He did chemo and started stem cells collection, didn’t collect enough so he took a break and he staring again on March . I try the best I can to help him but sometimes is very hard . Before being disappointed he has always being very afraid of getting sick (covid , flue, stomach virus) so now of course he’s gotten worse, I can’t see friends without feeling guilty, even outside, I wear a mask , ask the questions. Do you feel sick? Have you been close to anyone who’s being sick ? He totally takes me for granted, he also had a kidney disease so I need to cook plant base food only and measure . Like 1/4 brown rice, 2 Oz of chicken, 2 o 3 Oz of pasta ,when I forget because my memory is shot , he gets angry like how dare you forge what I need I don’t even know if I’m gonna be able to come back to this cycle cause I don’t even know how I got here
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XimenaG • Admin
Multiple Myeloma Discussion • February 23
Free In-Person Event in Greensboro
📍 Greensboro, NC, we’re coming to you. Join us on Saturday, March 21 for HealthTree Connect to Cures, a free, in-person event created for blood cancer patients and caregivers in your community. ✨ Learn directly from academic and community doctors ✨ Connect with others who truly understand ✨ Discover trusted resources, tools, and support ✨ Take home personalized materials to help you feel informed and empowered Lunch, parking, and beverages are provided. Space is limited, and this event will not be recorded. 👉 Register today to attend in person https://healthtree.org/blood-cancer/community/events/c2cgreensboro2026?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
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yellowFox
Multiple Myeloma Discussion • February 21
Can someone help me with my question?
What does it mean when doctors say 80% partial response, after stem cell transplant. Does this mean the transplant did not work?