Some stories don’t just inspire, they stay with you. On February 26, join us for “Unshaken: Navigating Blood Cancer with Jason Mook,” a special event featuring Jason’s powerful story of living with CLL and how education and community helped him and his family navigate diagnosis and care. 🎥 We’ll watch a featured video together 💬 Then Jason Mook will join us live to answer your questions in a Q&A 📅 Feb 26, 2026 | 7:00–8:30 PM EST 🔗 Register here: https://healthtree.org/myeloma/community/events/feb26-watch-partu-unshaken-documentary?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general Bring your questions or add yours in advance so we can prepare with Jason. #BloodCancer #CLL #PatientStories #CancerSupport #PatientEducation #CancerCommunity #WeCareWeCure #HealthTree

I started taking Bactrim the early part of September 2025 after my CAR T and have been on it continuously since. I have started experiencing hair loss (at a more rapid rate than usual) I am 66 years old woman and have had thinning over the years. I was wondering if anyone else has experienced this? I have my 6-month CAR T follow up next week. I may request that I be taken off it. Please let me know and if it grew back once stopped.

Hello All, Is a group health insurance plan more likely to cover Car-T as apposed to Medicare? If anyone has personal experience or knows from others experiences and would like to share, thank you in advance. I’m trying to decide whether to stay on my husband’s health insurance or switch over to Medicare now that I am 65. Best, Robin

I was diagnosed with MM in July 2025 since that time I have been taking Lenalidomide and had co-pay assistance from Teva, the manufacturer, that covered the prescription in full in conjunction with my commerical health insurance. In Jan the co-pay assistance covered $550. This month, Feb 2026, the manufacturer only covered $42 for a 21 day supply with 7 days off and indicated the medication costs $1.95 per pill airgo the change in what they will cover leaving my with an out of pocket cost of $509. From 0 to $509. I can't afford this and have not been able to get anyone to give me a more reason explanation. If the price changed perhaps CVS Specialty Pharmacy has not been made aware. Has anyone else taking Lenalidomide experienced this situation or perhaps has a more in depth explanation as to what has changed with the price and co-pay assistance from Teva with Lenalidomide. I am looking for assistance in order to clear this issue up and be able to continue my the medication without breaking the bank. Any assistance would be greatly appreciated. Thank you, LaSandra

I was diagnosed with MM in July 2025 since that time I have been taking Lenalidomide and had co-pay assistance from Teva, the manufacturer, that covered the prescription in full in conjunction with my commerical health insurance. In Jan the co-pay assistance covered $550. This month, Feb 2026, the manufacturer only covered $42 for a 21 day supply with 7 days off and indicated the medication costs $1.95 per pill airgo the change in what they will cover leaving my with an out of pocket cost of $509. From 0 to $509. I can't afford this and have not been able to get anyone to give me a more reason explanation. If the price changed perhaps CVS Specialty Pharmacy has not been made aware. Has anyone else taking Lenalidomide experienced this situation or perhaps has a more in depth explanation as to what has changed with the price and co-pay assistance from Teva with Lenalidomide. I am looking for assistance in order to clear this issue up and be able to continue my the medication without breaking the bank. Any assistance would be greatly appreciated. Thank you, LaSandra

I was diagnosed with MM in July 2025 since that time I have been taking Lenalidomide and had co-pay assistance from Teva, the manufacturer, that covered the prescription in full in conjunction with my commerical health insurance. In Jan the co-pay assistance covered $550. This month, Feb 2026, the manufacturer only covered $42 for a 21 day supply with 7 days off and indicated the medication costs $1.95 per pill airgo the change in what they will cover leaving my with an out of pocket cost of $509. From 0 to $509. I can't afford this and have not been able to get anyone to give me a more reason explanation. If the price changed perhaps CVS Specialty Pharmacy has not been made aware. Has anyone else taking Lenalidomide experienced this situation or perhaps has a more in depth explanation as to what has changed with the price and co-pay assistance from Teva with Lenalidomide. I am looking for assistance in order to clear this issue up and be able to continue my the medication without breaking the bank. Any assistance would be greatly appreciated. Thank you, LaSandra

At my recent visit to my oncologist, I thought I heard him say under his breath something about being immune compromised and not having a fever when you’re sick. So I asked ChatGPT (I know) and it seems that that’s a real thing. I don’t have enough immunity to trigger a fever in my body. So it’s more important for me to pay attention to how I’m feeling and if things are changing as opposed to worrying about whether I have a temperature or not. I find this kind of interesting because when I left the hospital, they said, “If your temperature is 100.4 or higher, go to the ER immediately!” However, it seems I may never reach that point. Has anybody else been told (or experienced) that you could have an infection or be sick without a fever? I guess I should clarify: I realize that healthy people can have an infection (cold, UTI, etc) without a fever. Maybe I should say “a serious infection that would normally spike a fever in a healthy person”.

I have ckd 3a. My pc told me I can improve kidney function by switching to decaf. 1. Is there a difference in flavor between reg and decaf black tea? 2. Anyone that has switched noticed an improvement?

I have ckd 3a. My pc told me I can improve kidney function by switching to decaf. 1. Is there a difference in flavor between reg and decaf black tea? 2. Anyone that has switched noticed an improvement?

I was diagnosed with IgA  kappa  multiple  myeloma Ultra high  risk about 9 months ago. Due to the severity of my back lesions, fractures etc. I am not a candidate for Kyphoplasty. Has anyone tried holistic treatments, acupuncture or massages of any kind to help w pain? Thanks

Does anyone have a severe headache after IVIG? I always get a headache 48 hours after treatment Some months are mild, some are very bad. Just wondering if it is normal.

I'm in my 4th cycle of Dara KRD and I suddenly developed very swollen feet at the end of cycle 3. I had a doppler done which ruled out blood clots. Then i had my week off (fourth week of cycle) and the swelling resolved. My oncologist at MSK reduced my dex to 20 mg from 40mg. However after starting Cycle 4, the swelling returned but this time with so much pain in my right ankle up to six inches above that. walking with a limp. So at symptomatic care, they performed an x ray and another doppler which were normal. My doctor called in Lasix 20 mg to take for three days, Has anyone on this therapy had similar experiences and were you and the team able to figure out if it was the dex causing the pain as well or was it carfizomib?

$8000 award. Assistance Type: Prescription Drug Copay or Insurance premium (Medicare Part B only). https://www.healthwellfoundation.org/fund/multiple-myeloma-medicare-access/

$8000 award. Assistance Type: Prescription Drug Copay or Insurance premium (Medicare Part B only). https://www.healthwellfoundation.org/fund/multiple-myeloma-medicare-access/

Back in 2024, I indicated that I was interested in joining the study being conducted by Dr. Ola Landgren at the University of Miami titled "Personalized treatment strategies based on genetics at diagnosis". Then in 2025, I indicated that I was interested in joining a study being done by Predicta Biosciences on a new non-invasive blood test. My question is: Are these two studies related? Can I be in one of them and not the other?