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CoachB
Multiple Myeloma Discussion • October 24, 2023
Getting SubQ IG Approved by Medicare After CAR-T?
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I have another question related to CAR-T. My understanding is that IVIG is being recommended for 12-18 months post infusion. Is anyone getting Subcutaneous IG approved and is that through Medicare Part D or B?
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Dherring
Multiple Myeloma Discussion • October 24, 2023
Will a Cold Affect PET Scan Results?
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I have had a head cold, congestion and swollen glands for a few days. I’m scheduled for my pet scan in a week. Will this cold mess with my results?
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CaraLee
Multiple Myeloma Discussion • October 21, 2023
Preparing for ASCT: Lessons Learned?
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I have my ASCT scheduled for November. I’m nervous. I know I am in good hands with my team at UNC Chapel Hill. I’ve read the literature about what to expect. I’m looking for lessons learned from those who have previous experience. Thanks!
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emeraldOyster
Multiple Myeloma Discussion • October 21, 2023
Choosing No SCT: Sharing Your Reasons?
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I was diagnosed with MM in May. Plasmacytoma, surgery, radiation, 10% plasma cells in bone marrow, standard risk. Blood chemistry is great; I feel great. My oncologist mentioned a stem cell transplant. From what I read almost everyone gets a SCT. What I want to know is whether there is anyone out there who has chosen NOT to get a SCT? Why did you make that decision?
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kealanisierra18
Multiple Myeloma Discussion • October 21, 2023
Experiencing Parkinson-like Symptoms Post-Carvykti?
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My husband recently went through CAR T therapy (Carvykti). He is about 4 months post-infusion. He spent 21 days in the hospital with some CRS and HLH. We are back in hospital as he seems to have developed Parkinson like symptoms. There is very little studied about this so attempting to see if anyone else has had a similar experience and what has become of it. Any insight would be greatly appreciated.
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SetyBlue
Multiple Myeloma Discussion • October 20, 2023
Giving Up Yogurt Post-Transplant?
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I had an appointment with a nutritionist prior to my admission to the hospital for ASCT, and one thing she told me that surprised me was that all yogurt with active cultures (doesn’t all yogurt have active cultures?) was off the table for at least 2 months after transplant. Did you have to give up yogurt for a few months?