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DIahanna • Admin
Acute Myeloid Leukemia Discussion • March 17
Join Financial Connect Group
PLease join our Financial Connect Group where you will get relevant timely information regarding costs, access to treatment and other topics.
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Michael
Chronic Lymphocytic Leukemia Discussion • March 13
VACCINES AND CLL
Peace all ✌️ I was just diagnosed with Lukemia CLL. Apparently I’ve had high white blood cell counts for the last 13 years but just found out about it recently. My Cancer Doctor wants me to receive a host of inoculations because of my low immunity to fighting off potential illnesses. The shots she listed were For Corona Virus. Shingles. Cocil pneumonia, flu etc. I have had the Moderna vaccine in the past. I’m just so Leary now about all of these stories about illnesses and weird happenings with these vaccines lately. Wondering if I would be better off without them. Anybody care to weigh in ???
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XimenaG • Admin
Chronic Lymphocytic Leukemia Discussion • March 12
Managing Nutrition During Treatment
🥗 Nutrition During Blood Cancer Treatment: Eating Well Through Treatment and Recovery Eating well during blood cancer treatment can be challenging. Changes in appetite, taste, and side effects can make daily meals difficult, but the right nutrition strategies can help support your strength and recovery. Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, for a practical webinar designed for patients and caregivers. You’ll learn: • How to build a flexible and sustainable eating pattern during treatment • Tips to manage appetite loss and taste changes • Food safety essentials for patients with weakened immune systems • Nutrition strategies to support recovery and long-term health 📅 March 19, 2026 ⏰ 2:30 – 3:30 PM EDT 💡 Can’t attend live? Register anyway, and we’ll send you the recording. Register here: https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
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XimenaG • Admin
Acute Lymphocytic Leukemia Discussion • March 12
Nutrition During Blood Cancer
🥗 Nutrition During Blood Cancer Treatment: Eating Well Through Treatment and Recovery Eating well during blood cancer treatment can be challenging. Changes in appetite, taste, and side effects can make daily meals difficult, but the right nutrition strategies can help support your strength and recovery. Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, for a practical webinar designed for patients and caregivers. You’ll learn: • How to build a flexible and sustainable eating pattern during treatment • Tips to manage appetite loss and taste changes • Food safety essentials for patients with weakened immune systems • Nutrition strategies to support recovery and long-term health 📅 March 19, 2026 ⏰ 2:30 – 3:30 PM EDT 💡 Can’t attend live? Register anyway, and we’ll send you the recording. Register here: https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
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XimenaG • Admin
Acute Lymphocytic Leukemia Discussion • March 12
Register! Nutrition During Blood Cancer
🥗 Nutrition During Blood Cancer Treatment: Eating Well Through Treatment and Recovery Eating well during blood cancer treatment can be challenging. Changes in appetite, taste, and side effects can make daily meals difficult, but the right nutrition strategies can help support your strength and recovery. Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, for a practical webinar designed for patients and caregivers. You’ll learn: • How to build a flexible and sustainable eating pattern during treatment • Tips to manage appetite loss and taste changes • Food safety essentials for patients with weakened immune systems • Nutrition strategies to support recovery and long-term health 📅 March 19, 2026 ⏰ 2:30 – 3:30 PM EDT 💡 Can’t attend live? Register anyway, and we’ll send you the recording. Register here: https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
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MHolden
Chronic Lymphocytic Leukemia Discussion • March 6
If you don’t laugh…
I’m a 42-year-old woman and having high risk CLL is quite unusual for us. Today, I got my Calquence delivered, and it came with a little freebie from the pharmaceutical company. Which, of course, also came with a pamphlet and information about the medication. Of course, all of the photos are of older folks. And I think I just have to giggle at it because what other choice do we have? I joke that I’m the wrong kind of unicorn-certainly unusual and interesting to my care team but also I feel like sometimes they don’t know what to do with me or what to say to me. On my last visit, my nurse practitioner tried to reassure me that people with CLL have “full lifespans “ and that I should expect 20 to 25+years. Which is amazing in the context of cancer. But when I think about the fact that my son in 20 to 25 years will be younger than I am now. It just doesn’t feel like enough time.. So sometimes I feel like gallows humor is the only option. I joke about things like , Why contribute to my 401(k) or IRA if I’m never going to be old enough to use it? And while some might find that morbid I choose to find humor in it because somehow it keeps me moving forward. So I look at these photos of older patients, and I just have to laugh because something the pharma company is targeting at me reflects a place I may never get to. And if I don’t choose to find that funny then it’s just too sad. To laugh at how ridiculous this all is somehow makes it all less heavy.