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Luz42
Multiple Myeloma Discussion • May 22
Starting treatment next week.
Hello all, I am newly diagnosed (SMM since 10/2020) and will be on Dara, Velcade and Dex. I am starting treatment because I have osteoporosis and have multiple spine fractures (no lesions). I am leary about starting biphosphinates and even more terrified about starting treatment since I am very thin (undernourished) weighing 103 at 5'8". I am prone to nausea and worried it will make my back fractures worse. I am currently using a walker because I have a difficult time sustaining my core. Anyone has anything similar? I am very nervous about getting started.
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Dallas#1
Myelodysplastic Syndromes Discussion • May 19
MDS Leukemia????
My brother is an inpatient right now getting treated for relapse MM MDS and malnutrition since he started and stopped Teclistamab with IVIG therapy he started unexpained weight loss in last year to date 60 lbs and lung infections that never healed I was hoping once in hospital we’d have some idea what’s happening to him His WBC was critically high 45.7 and not decreasing much even though in hospital getting strong antibiotics He just call d saying they came in and said he has luekemia and will be treated but as outpatient but at least it’s not acute We are so confused It’s all abbreviations and we don’t know what’s worse or better at this point MM MDS AMO CMML Anyone have any advice with this??? IDK how you can have MM and MDS and straight to luekemia so fast and then get discharged???
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Pmp777@gmail.com
Multiple Myeloma Discussion • May 16
CarT side effects
Has anyone experienced diarrhea after CarT and while on prophylactics with Bactrim and acyclovir and BP meds? If so how was it resolved?
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Iliana • Admin
Chronic Lymphocytic Leukemia Discussion • May 15
Share Your Voice to Guide CLL Research
Help us advance CLL/SLL research! 🔬 We want to hear from you. We’ve launched a short survey to learn about your treatment goals and daily challenges. Your input helps us bridge the gap between patient needs and clinical care. Your participation is voluntary, and your data remains anonymous for research analysis. 🔗 Start the survey here: https://healthtree.org/cll/curehub/private/research/wxw9gioA0FAsBF3PSKeD?utm_source=&utm_medium=meta&utm_campaign=socialmedia&utm_content=general