Good morning i am a polycythemia vera patient for 15 years phlebotomy only until a year ago i tried hydroxarea and my skin started peeling and burning i am just now starting jakafi and was wondering how your doing on it

Hi everyone. Has anyone wanted to discuss CAR T as a treatment option with their doctor but were told that it wasn't right for you even though you thought you were eligible? And what did you do about it?

They are introducing Total Assist which has some great financial opportunities for some of us. Check out their website at www.uniting.patientadvocate.org for more details.

We’re heading to the mountains for a cause that unites us all. 🏔️🧡 The 2026 HealthTree Challenge: Hike & Wellness is heading to Vail, CO, this October 15–17! This transformative experience brings together patients, caregivers, and supporters for a 3-day journey of personal triumph while fostering connections that will last a lifetime. Joining the Challenge team is a commitment to your personal wellness, it strengthens our blood cancer community, and raises awareness and funds for life-changing research. Every step on that trail is a step toward a cure. We hope you join us! ✨ 📩 Email Taryn at taryn@healthtree.org to learn more or join our interest list here: https://give.healthtree.org/event/healthtree-challenge-hike-and-wellness-2026/e775590?c_src=socialmedia

A cancer diagnosis impacts more than physical health. It can deeply affect emotional well-being, too. As part of Mental Health Awareness Month, join Dr. Meagan Dwyer for a compassionate conversation on practical tools to help patients and caregivers manage stress, anxiety, and the emotional challenges of cancer. Whether you are newly diagnosed or living with cancer long term, this webinar offers evidence-based strategies to help you feel more supported and in control. 📅 May 13 | 8 PM EDT 🎥 Can’t attend live? Register to receive the recording. Register: https://healthtree.org/blood-cancer/community/events/may26-mental-health-tools-blood-cancer?utm_source=social-media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

A cancer diagnosis impacts more than physical health. It can deeply affect emotional well-being, too. As part of Mental Health Awareness Month, join Dr. Meagan Dwyer for a compassionate conversation on practical tools to help patients and caregivers manage stress, anxiety, and the emotional challenges of cancer. Whether you are newly diagnosed or living with cancer long term, this webinar offers evidence-based strategies to help you feel more supported and in control. 📅 May 13 | 8 PM EDT 🎥 Can’t attend live? Register to receive the recording. Register: https://healthtree.org/blood-cancer/community/events/may26-mental-health-tools-blood-cancer?utm_source=social-media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

For those of you who have received or are considering applying for grants for copay, deductible, co insurance and premium reimbursement there are some great changes coming with Total Assist affective July 1. Some grants have been expanded and nothing has been reduced.

Has anyone from our group done a parasite clease? If so, which treament did you use?

I'm going to be switching from generic Lenalidomide to original Revlimid. Does anybody have information on the cost difference?