Hello All, If you are having trouble getting Revlimid covered by your insurance and Lenalidomide which may be hard to access, I have heard of patients asking doctors about other alternatives. Always contact your drug manufacturer to see if they have a patient assistance program.

I have been taking Valcave for maintenance. It's been working for me the past 4years. I go once a week for treatment but it was better then Revlimid. That medication gave me DVT in my right leg and PE in my lungs. This is just my experience with Revlimid. Stay strong and talk with your doctor about the difference med that could help. I'm praying for all of us to stay strong.

I WAS TAKEN OFF RVD ABOUT FOUR YEARS AGO BECAUSE BECAUSE MY HEALTH HAD BEEN DETERIORATING. I HAVE TURNED OUT TO BE IN TOTAL REMISSION SINCE THEN AND HAVE HAD NO TREATMENT. MY MAJOR PROBLEM HAS BEEN SEVERE NEUROPATHY AND LUNG ISSUES CAUSED BY MY CHEMOTHERAPY. I WAS OVERDOSED BY VELCAID WHICH CAUSES NEUROPATHY.

I was diagnosed with IGA multiple myeloma four and a half years ago. I completed, 16 weeks chemotherapy and then completed a successful stem cell transplant. Following my 100th day testing showed complete remission. Remission lasted until last May when a solitary plasmacytoma was detected in my upper humerus bone. A PET scan showed the tumor very clearly. But no other site involved . Following radiation I started daralex faspro. An additional PET just before surgery showed multiple lytic lesions throughout my body. Surgery was suggested because of damage to the bone and worry of fracture. I had a complete reverse shoulder replacement in November. Following surgery Velcade and dexamethasone were added to the chemotherapy. These were to work to reduce the lesions. They seem to be working but on a lumbar vertebrae it not recovering as one would hope. So we continue chemotherapy and will be back to radiation on the vertebrae. The hope is to get back to remission. Does anyone have experience with IGA? It's the second most common but a little more aggressive than IGG. Thanks for any experience you can share.

You're not alone in facing blood cancer. At HealthTree, we know how important it is to have a strong support system. That’s why we’ve created Regional Cure Teams—volunteer-led groups that connect and support patients in their own communities. Our Cure Teams are spread across the country: 🔹 Pacific 🔹 Rocky Mountain 🔹 Southwest 🔹 Midwest 🔹 Southeast 🔹 Northeast 💙 Find your team here: https://qrco.de/CureTeams

You're not alone in facing blood cancer. At HealthTree, we know how important it is to have a strong support system. That’s why we’ve created Regional Cure Teams—volunteer-led groups that connect and support patients in their own communities. Our Cure Teams are spread across the country: 🔹 Pacific 🔹 Rocky Mountain 🔹 Southwest 🔹 Midwest 🔹 Southeast 🔹 Northeast 💙 Find your team here: https://qrco.de/CureTeams

You're not alone in facing blood cancer. At HealthTree, we know how important it is to have a strong support system. That’s why we’ve created Regional Cure Teams—volunteer-led groups that connect and support patients in their own communities. Our Cure Teams are spread across the country: 🔹 Pacific 🔹 Rocky Mountain 🔹 Southwest 🔹 Midwest 🔹 Southeast 🔹 Northeast 💙 Find your team here: https://qrco.de/CureTeams

You're not alone in facing blood cancer. At HealthTree, we know how important it is to have a strong support system. That’s why we’ve created Regional Cure Teams—volunteer-led groups that connect and support patients in their own communities. Our Cure Teams are spread across the country: 🔹 Pacific 🔹 Rocky Mountain 🔹 Southwest 🔹 Midwest 🔹 Southeast 🔹 Northeast 💙 Find your team here: https://qrco.de/CureTeams

You're not alone in facing blood cancer. At HealthTree, we know how important it is to have a strong support system. That’s why we’ve created Regional Cure Teams—volunteer-led groups that connect and support patients in their own communities. Our Cure Teams are spread across the country: 🔹 Pacific 🔹 Rocky Mountain 🔹 Southwest 🔹 Midwest 🔹 Southeast 🔹 Northeast 💙 Find your team here: https://qrco.de/CureTeams

You're not alone in facing blood cancer. At HealthTree, we know how important it is to have a strong support system. That’s why we’ve created Regional Cure Teams—volunteer-led groups that connect and support patients in their own communities. Our Cure Teams are spread across the country: 🔹 Pacific 🔹 Rocky Mountain 🔹 Southwest 🔹 Midwest 🔹 Southeast 🔹 Northeast 💙 Find your team here: https://qrco.de/CureTeams

You're not alone in facing blood cancer. At HealthTree, we know how important it is to have a strong support system. That’s why we’ve created Regional Cure Teams—volunteer-led groups that connect and support patients in their own communities. Our Cure Teams are spread across the country: 🔹 Pacific 🔹 Rocky Mountain 🔹 Southwest 🔹 Midwest 🔹 Southeast 🔹 Northeast 💙 Find your team here: https://qrco.de/CureTeams

People with multiple myeloma which has come back or stopped responding to treatment may be able to join the MagnetisMM-32 trial. Together, we could make a difference.     For more details about Pfizer’s MagnetisMM-32 clinical trial, please visit: https://www.pfizerclinicaltrials.com/nct06152575-multiple-myeloma-trial?cmp=789d7f1a-53cf-4154-bafc-ad212d49eef7&ttype=FB

Hello everyone, I am looking for any words of wisdom on maintenance. Has anyone here done RVD for 4 months (I think that’s 1 round? ) numbers go to zero, remission and not done any maintenance medication? What are the alternative methods? My fiancé is 41 and is in excellent physical condition. He only has a couple weeks left of RVD and is looking for alternatives to maintenance. Thank you ♥️

Hello Everyone, I'm a Kappa Light Chain Myeloma patient who underwent a stem cell transplant in March 2024. Since July 2024, I've been on a 10 mg dose of Lenalidomide as maintenance therapy. Over the past seven months, my light chain ration has remained in the "green zone" with both Kappa and Lamda slightly above the upper limitg. However, my recent test results showed an unexpected increase: my lambda light chains rose to 45 (from 17 last month), while kappa remained at 22. Despite this, my kappa/lambda ratio is still within the normal range. Has anyone else experienced a similar situation? I'm hoping this is just a one-time anomaly. As my Myeloma was a Kappa light chain disease, could this elevation of Lambda be considered non -specific? My results shown below:

Since obesity is an important risk factor for MM, have any non-diabetic folks considered taking Ozempic or other GLP-1 RA medicine to reduce weight and thus reduce risk of MM or progression to MM from MGUS or SMM.