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NKP64
Multiple Myeloma Discussion • February 16, 2025
Understanding Soft Tissue in a Lytic Lesion?
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Hi all. Just wanted to understand perspectives from my PET CT scan . lytic destructive lesion is seen in the D8 vertebra with associated intraosseous soft tissue component. Lytic lesions is something I am aware of as MM symptom. What is this soft tissue thing and how common is this? Can I get some insights please? If there any links or videos discussing them, I would appreciate it if these can be shared. I believe knowledge is power. Thank you
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Purpleladyelaine
Multiple Myeloma Discussion • February 15, 2025
Experiencing Nosebleeds in Remission?
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I am in remission and on no medication and have suddenly started having frequent nose bleeds. Some worse than others. I don’r know if this is myeloma related or something different. Has anyone else experienced this?.
Thumbnail for Myeloma Patient Preferences: HealthTree Decision-Making Survey | Manni Mohyuddin, MD | #ASH24
Playlist: ASH 2024

Myeloma Patient Preferences: HealthTree Decision-Making Survey | Manni Mohyuddin, MD | #ASH24

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kenlevy
Multiple Myeloma Discussion • February 13, 2025
Managing Insurance for Treatment Coverage
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Sally posted in the Coaches Forum the following: HealthTree Coaches Well, after 6 years I now have a problem with insurance. And not just insurance paying for a treatment but for in my estimation, arbitrarily changing the vendor on my IVIG solutions. I learned today that Medicare nor anthem Blue Cross will pay for Car+T therapy. So my next treatment in March will be bispecifics. Dr Abonour also told me that he expected me to be down to one infusion a month by June. That means travel schedules don't have to be changed in September. Can some other Financial Coaches check out the posts and advise Sally. - Thanks
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Moni64
Multiple Myeloma Discussion • February 12, 2025
Managing Nonsecretory MM: Monitoring & Therapies?
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Hello all, Is anyone dealing with nonsecretory disease? We are understanding this is a MM condition where there is no detectable paraprotein in the urine or blood test. If you have the same condition how are you and your doctors monitoring your disease? How often are you doing PET or other scans? What therapies are you using? Thanks in advance for your responses and keep up the good fight💪🏼🙏🏼
Thumbnail for How likely is it that myelodysplastic syndromes will progress to acute myeloid leukemia? Are there certain types of myelodysplastic syndromes that are more?
Playlist: MDS Progressing into AML

How likely is it that myelodysplastic syndromes will progress to acute myeloid leukemia? Are there certain types of myelodysplastic syndromes that are more?

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