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chocolateMonkey
Multiple Myeloma Discussion • October 3, 2023
Sharing My Positive ASCT Recovery Experience
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To the person awaiting ASCT Ihaf my ASCT in 2009, so this Mar not be timely. I was also very physically active. I did slot of walking while I was inpatient at COH. I made a point of eating small amounts of food throughout the day. I was inpatient for 16 days, and got home and continued to walk Got back on my bike 30 days out and pack to the gym (weight-lifting) as soon as my team allowed me around folks. I wasn't fatigued ever. I didn't relapse until 2014 ( 4 1/2 after my ASCT) All I can say is dx'd 2008 and still here in 2023. Denise H
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audrey • Admin
Multiple Myeloma Discussion • October 2, 2023
Sharing Promising CAR-T News for Amyloidosis
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Hi all! I wanted to show you some really interesting data that just came out about a potential CAR T cell therapy treatment. It's the first one that has been proven to treat amyloidosis successfully! https://healthtree.org/myeloma/community/articles/outpatient-cart-treatment
Outpatient CAR T Therapy for Myeloma Patients - HealthTree for Multiple Myeloma

Outpatient CAR T Therapy for Myeloma Patients - HealthTree for Multiple Myeloma

Learn about the product NXC-201, a CAR-T that overcomes neurotoxicities, treats amyloidosis, and is potentially the first to be outpatient.

https://healthtree.org/myeloma/community/articles/outpatient-cart-treatment
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DIahanna • Admin
Multiple Myeloma Discussion • October 2, 2023
Financial Support: Free Coaching & Resources
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For those who don't know me, I am the Financial Program Manager at Health Tree. I present financial webinars the first Tuesday every other month as well as Financial Articles monthly. I am also the Lead financial Coach. So if you need help finding financial assistance for co-pays. deductibles, travel costs assistance, utilities or urgent needs, finding RX expenses assistance etc. Or if you have questions about health insurance, including appeals, understanding your insurance, Social Security Disability, applying and appealing, understanding FMLA and ADA, or anything else financial, I would be glad to assist you. Our goal is to give you the financial tools necessary to help you stay on track in your financial life and not experience financial toxicity. Reach out to the Coach site and request a financial coach. We are always glad to help
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kealanisierra18
Multiple Myeloma Discussion • October 2, 2023
Experiencing Muscle Pain & Fog After CAR T?
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My husband recently went through CAR T therapy (Carvykti). He is about 4 months post-infusion. He spent 21 days in the hospital with some CRS and HLH. Since being released he experiences severe muscle pain. His strength is not nearly what it was and experiences mild full body muscle pain during the day and at night some targeted intense muscle pain in his shoulders. It doesn't seem to be improving. He is also pretty foggy in the head in the mornings and night with very limited emotions. Anyone else with similar experience? Wondering if it will subside with time or if further treatment necessary?