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Donna
Multiple Myeloma Discussion • June 29
Post car t bloodwork
Five weeks after car t I had my bloodwork done. My kappa came back as . 6 Lambda was 3.24 ( not sure it was 3 something) I’m kappa so I care more about that. Ratio not calculated since the values were so low. I’m thinking this is a good sign that the car t is working. Anyone else hade these results or your thoughts please
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jg1949
Acute Myeloid Leukemia Discussion • June 28
Just informed I have AML and a bit foggy
I am 77 years old and live alone but have relatives near by. I don't know if this is the right place or not to find out about Hospice care? If someone could point me in the right direction it would be greatly appreciated!
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Pheba1
Multiple Myeloma Discussion • June 27
What causes MM?
On Wednesday of last week I attended a birthday party for a friend in my sewing group. She just turned 90. I baked the cake. My first layer cake in decades, a carrot cake. It turned out great. After food and cake we sat around the table chatting. They know I have MM. Then they went around the table in a circle talking about family members, and friends they know with MM. There were 7 ladies and 7 family members or friends with MM. I was floored. Why so many? I saw my oncologist on Thursday. I told him about the party. He said MM was endemic in our area. I asked him what caused it. He said cancer is caused by 3 things; what we do to our self, what the environment does to us, and what we inherit from our ancestors. That was as clear as an answer as I could get. I am guessing that the truth is that doctors and scientist suspect what causes some cancers, but have no proof. I do know I live in a rural area with farming and pesticides. The neighbor behind us died two years ago from Leukemia. Another neighbor died two years ago from Leukemia also. I suspect it may be more complicated. We have something called epi-genes, genes that turn genes on or off. Some people have epi-genes that can mutate a chromosome when exposed to a cancer causing agent. Others have epi-genes that do not get turned on, even if they take a bath in a pesticide. We may never know, but I find the coincidence of MM being endemic in our area interesting.