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chocolateCow
Multiple Myeloma Discussion • June 24
MGRS (I know it’s not MM, but it’s treated like MM)
OK, long story short, I was diagnosed with MGRS in 2021. Had a ACST and have been on maintenance since (Velcade and Darzalex). Went to the doctor today and he recommended CAR-T. Heard a lot about CAR-T for MM, but never for MGRS. I was wondering if ANYONE else has gone through this therapy or have heard of an MGRS patient having this done. All responses would be appreciated. Thanks, Rick
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Tylerc2425
Multiple Myeloma Discussion • June 24
How does everyone deal with the fatigue?
I'm 35 male who was diagnosed on 7/5/2025. Had ASCT on 3/16 and still battling fatigue. I seem fine on days when I'm out and about and doing stuff but when trying to work my office job from home will notice I will randomly fall asleep which obviously isn't ideal to maintain a job haha. Curious if this is what I can expect for the rest of my life or gets better. Currently on a break from all treatment but will start back on 7/14 with Dara/Rev. Dread that adding to the fatigue as well.
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tarheel67
Multiple Myeloma Discussion • June 24
Balancing Kaiser and VA Care: Anyone Else?
AI-generated title
I have been a member of Kaiser Permanente for years and have elected to receive my oncology care there. However, there are some definite financial advantages to also have a relationship with the VA so I have a PCP and a relationship with oncologists in both places. Does anyone else find themselves in a similar situation?
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Iliana • Admin
Multiple Myeloma Discussion • June 23
New Trial Option for Advanced Myeloma
Learn About the DOMMINO-1 Clinical Trial DOMMINO-1 is a Phase 2 study evaluating inobrodib in combination with pomalidomide and dexamethasone for people living with advanced multiple myeloma who have already received several prior treatments. Researchers are studying whether this treatment approach may benefit patients whose disease has become more difficult to treat. Clinical trials can provide access to investigational therapies while helping advance myeloma research. Learn more about participation: https://clinicaltrials.gov/study/NCT07096778?term=CCS1477-04&rank=1 Email: 📩 clinical@cellcentric.com Call: 📱 +44 1799 531130 #MultipleMyeloma #ClinicalTrials #CancerResearch #HealthTree
ClinicalTrials.gov

ClinicalTrials.gov

https://clinicaltrials.gov/study/NCT07096778?term=CCS1477-04&rank=1