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Gerii2002
Multiple Myeloma Discussion • July 9, 2025
Managing Pain & Bowels on Watch and Wait?
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Hi, I have eye issues too! I am so affarid to get it done! I am not on Medcine yet, it's kind of odd,, they find MM in bone marrow but it sits ! This is since 2016, yes I pray a lot and I believe God protects me, but will it just go away by itself?? The pain I go through kills me, and the bowels are horrible, do you have issue with bowels? Everything I eat just comes out and yet I can't eat!!! I go for my check up on Friday, I will ask him again. Be
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Jenny
Multiple Myeloma Discussion • July 8, 2025
Connecting With Caregivers About ASCT?
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Hi, My partner will be undergoing the autologous stem cell transplant and I wondered if there are some caregivers out here to connect with. It’s all coming so fast and I would like to know what it’s been like caregiving and keeping everything safe. Thanks
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MolliesMan
Multiple Myeloma Discussion • July 8, 2025
Continuing Acyclovir During Maintenance?
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Hi. I. am 82 and was diagnosed MM in Feb 2025. I have since completed 8 infusions of Darzalex, Dexamethasone and Difenhydramine and took oral Revlimid 10mg 21/7. My doctor also initially put me on Acyclovir twice daily. Now, after the initial 8 treatments, my infusions have been set for a month apart ...same meds. My question: has anyone else had to continue taking the Acyclovir BID during the non-treatment days/weeks? My doctor postponed our last meeting, so I hope to see him on 7/10 to ask this and other newbie questions.
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bronzeMouse
Multiple Myeloma Discussion • July 7, 2025
ABBV 383: Sharing Experiences?
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I was offered ABBV 383 treatment after the second relapse . Can anyone share their experience ? What do I need to be aware of ? Thanks
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sarahrfthompson
Multiple Myeloma Discussion • July 7, 2025
Young with MM & Amyloidosis: Seeking Advice?
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I am 36 years old and recently diagnosed with MM with AL Amyloidosis in March 2025 after experiencing swelling in my body and a bony lesion forming above my right eye. I started chemo (Darzalex Faspro + Cyclophosphamide + Velcade) in May 2025 and I receive it on a weekly basis. I’ve been told many times that I am not the typical demographic for this type of cancer and even more atypical because of the amyloidosis tacked on. I will likely have an ASCT at the end of this chemo regimen at the end of the year. Are there others who were diagnosed at a younger age and/or with amyloidosis? What has helped you throughout your journey, personally and work-wise? Mine is just getting started and I’m experiencing all kinds of highs and lows…while also maintaining a full-time career as a CPA.