Has anyone in the group who is IgG Kappa with a 1q gain who has had a ASCT opted to take a break from maintenance meds? The ASCT was in Dec of 2023. Then Darzelex for 18 months. Thanks for any feedback.

Day 14 Carvikti. Was treated on Day 7 with tocilizumab for CRS. I'm workng on overcoming weak appetite and eating issues by using high protein drinks and soups, along with yogurt and milkshakes. I'm looking forward to labs tomorrow to learn how my whites and reds are doing. Basically, I think my Carvikti is fairly typical so far.

I hope everyone had a good 4th of July. Has anyone tried a grounding mat to help with neuropathy? Thank you for any input. Mske it a great day!’

Hi I will be starting a new treatment soon called Isa KD Isatuximab Carfilzomib and Dexamethasone. I am out of remission from my Stem Cell transplant after only 2 1/2 years, so I’ve been classed as high risk. I’m feeling very down about this treatment as it’s an every week transfusion for a while then every week for 3 weeks with a week off. I live in Canada so treatments may be different here, has anyone had this treatment? And what was your experience. I would be grateful for any information. Thank you

Has anyone heard anything about the measles vacinne post ASCT?

I leave the hospital tomorrow after my ASCT. Thank the Lord I did not have any fever, only threw up a few times, and only a few bouts of diarriah. The hospital I am at (In Israel) seems Very conservative in what I need to watch out for when I go home. Questions: 1. (I know I am bringing up a hornets nest...) Do masks work? Should I plan on wearing one even if there are only 1 or 2 people around? And for how long? 2. How careful do I need to be with the sun? They say I should not be out in the sun at all for a year because of the Chemo and chance for secondary cancer. That seems crazy! 3. They say not to go out to eat because you don't know who or how the food was prepared. 4. How careful in general do I need to be regarding being around other people? I was immune compromised before my Stem Cell transplant...I was not so careful then and had no problems... How long do I need to be careful??