ASCT September, 2021. Currently on FastPro monthly with IVIG when needed. I seemed to have gotten a bug. Dr prescribed azithromycin x pack for 5 days. And I started mucinex 400 mg every 6 hours. Then saw Dr who took chest X-ray and had nose swab for Covid, RSV, flu etc. Chest X-ray confirmed bronchitis. Since I no longer am running a fever and lymphocytes have dropped but not the white blood cell count, the Dr believes it is viral vs bacterial. I’m currently on mucinex 600mg with pseudoephedrine extended capsules twice a day. My IgA has dropped this last draw from 18 to <5. IgG is 442. Was scheduled for IVIG but then got sick. Any thoughts on what I should be taking or doing since I don’t feel like I’m getting better? Do you know if I can get IVIG now? No fever. Thanks!

According to Fund Finder, PAN Foundation has a copay assistance program open now. See attached screenshot.

I’ve been waiting for doctor/hospital to get insurance pre-authorization for DKRd regimen for newly diagnosed MM. Treatment is scheduled to start in about two weeks, and I find the lack of clarity and urgency on the financial side disturbing. I’ve asked the doctor’s staff, called the hospital’s billing department directly, etc. without a useful response. Is this normal? Suggestions?

Hi everyone! It’s been a little quiet here lately, so I thought I’d help get the conversation going again. I’m hosting a webinar this Friday, May 9th at 12:30 PM ET on how to support kidney health through plant-focused nutrition. Even if you can’t attend live, feel free to register—I’ll make sure to send all the resources shared during the session. After the event, I’d love to come back here and continue the conversation together. Let me know what you think! Here is the link if you would like to register: https://healthtree.org/myeloma/community/events/may2025-myeloma-kidney-involvement-nutrition

Hi, I’m Iliana, the Social Media Manager at HealthTree.
We’re so excited to have you join HealthTree Connect! We’re building a new community, and we’d love for you to be a part of it.
Feel free to post in the General Discussion, or if you haven’t already, join a group and start connecting there. 👋 Introduce yourself and share something you’d like to learn or talk about—we’d love to get to know you! Thanks for being a part of the HealthTree community!

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Asct

I was diagnosed with MM on Aug 22, 2018 on the morning of my 61st birthday. I was shocked because I didn’t feel sick. I had a back ache that just wouldn’t go away. It was my kidney in stage 4 failure. I was on the top of my career and felt I could overcome this and return to work. I started treatment immediately and was doing well when my colon burst. They couldn’t treat me because of the chemo so I was in the hospital being treated with antibiotics until my condition enabled me to have surgery to remove 12” of colon and repair my intestinal track. I returned to chemo shortly after and was preparing for my stem cell transplant. In March of 2019 I had the transplant, unfortunately it only lasted for 8 months. Back to the infusion lab and start of a new treatment. Fast forward to today, I’m retired and doing very well. We bought a motor home and enjoy traveling throughout the country. I’m doing so well I can take chemo holidays to travel. I spend my time now doing a prison ministry, visiting nursing facilities and playing with grand kids. I go for monthly chemo (Dara) and take palmalyst 21 days followed each infusion. I take many vitamins and have a diet that keeps me going. My life today is good and I m not limited in what I can and want to do. My wife has been the best caregiver I could have ever wished for. She does all the research and keeps my Doctor informed. Life is short in the big picture and I have dedicated my life to service.

Considering stopping Revlimid because I have been in remission 3 years with an m spike that dropped to zero three years ago. I want to end the side effects from Revlimid and steroids. Has anyone else done this? My Dr is in agreement and will monitor if the MM returns

PAID Patient research for recent CAR T experience - $200 incentive To qualify you or your loved one: 1) must live in the US; 2) have Multiple Myeloma 3) must have CAR T experience in the last 2 years (or so). This research is easy to participate in: It's one 60 minute confidential and anonymous call with one moderator asking about your experience. If you do the call, FACP will pay you $200 via venmo, paypal, zelle or mailed check. Find a Cure Panel specializes in patient research for rare and serious diseases and has some new patient research for those with recent CAR T experience for MM. If you're interested in participating, please text FACP at 323 717 8117 or email info@findacurepanel.com -reference FACP/MM CAR T - you can also write me a private message if you have questions. please pass along to CAR T patients. See less

PAID Patient research for recent CAR T experience - $200 incentive To qualify you or your loved one: 1) must live in the US; 2) have Multiple Myeloma 3) must have CAR T experience in the last 2 years (or so). This research is easy to participate in: It's one 60 minute confidential and anonymous call with one moderator asking about your experience. If you do the call, FACP will pay you $200 via venmo, paypal, zelle or mailed check. Find a Cure Panel specializes in patient research for rare and serious diseases and has some new patient research for those with recent CAR T experience for MM. If you're interested in participating, please text FACP at 323 717 8117 or email info@findacurepanel.com -reference FACP/MM CAR T - you can also write me a private message if you have questions. please pass along to CAR T patients. See less