Your Feed

Filter by
See content from
Back to the latest
Avatar
may33jen
Multiple Myeloma Discussion • September 19
Talvey Side Effects: How Long to Recover?
AI-generated title
Has anyone on Talvey experience vertigo and ataxia? if so how long does it take to recover. I noticed a week after receiving my 4th step up dose the vertigo and ataxia. I still have the symptom but slightly better. I lost my sense of taste after the 2nd step up dosage. How long does it take to recover? I am off the med. due to the side effects.
Avatar
Miche4Life
Multiple Myeloma Discussion • September 18
Plasma Cell Leukemia
Anyone here diagnosed with primary Plasma Cell Leukemia. Diagnosed recently and doing immunotherapy. Stem Cell transplant to follow, if numbers keep falling. Anyone else with this rare disease?
Avatar
654321cba
Chronic Lymphocytic Leukemia Discussion • September 17
Joe G
Have a mutated CL insulin for about 10 years felt well but 11th year starting to feel fatigue at times and nasal issues. Any advice on how to help deal with these issues?
Avatar
Barbara
Multiple Myeloma Discussion • September 16
Neuropathy
How to treat neuopathy?
Avatar
Donna
Multiple Myeloma Discussion • September 14
Post car t
So I will be having my mm bloodwork done in October. My June and July bloodwork was excellent. My kappa light chains were .6 my bmb and pet scan were also clean. I’m just wondering if my kappa light chains rise a bit is that a cause for concern? Do your light chains still fluctuate after car t ?
Avatar
4101Rowan
Acute Myeloid Leukemia Discussion • September 13
Midostaurin maintenance
30 yo daughter with AML FLT3-TKD INV16 has upcoming cycle 4 of consolidation and then done. Became MRD negative after cycle 1. Doc is trying to avoid BMT. Did anyone do the 12 months of Midostaurin after consolidation, and how did it go? Did it stall hair growth for 12 months? Any other issues with Mido maintenance?