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PattyG347
Multiple Myeloma Discussion • March 1, 2023
Experiencing Low BP on Revlimid and Dex?
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Has anyone experienced low blood pressure while on Revlimid and Dex? I was on two meds for *high* blood pressure but recently my blood pressure dropped dramatically. The doctor has removed one of my meds and my pressure is improving. I am not complaining at all about being able to eliminate one of my meds, it's just strange and sudden. I am on Revlimid and Dex for high-risk SMM. Thanks!
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Taschinka2018
Multiple Myeloma Discussion • March 1, 2023
Fever and Blue Feet - Anyone Else?
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My mother has suddenly fever for ever a week and blue feed. It seems to put her down and as more depressed even though she is taking antidepressants. Does anyone have fevers?
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khakiSheep
Multiple Myeloma Discussion • March 1, 2023
Managing Muscle Cramps On Revlimid?
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Do any of you get muscle cramping from Revlimid? I’m on 10 mg for 21 days with 6 mg of Dex and subcutaneous injection of Daratumumab once a month? If so, is there anything which can be done about the cramping? Thanks.
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DIahanna • Admin
Multiple Myeloma Discussion • March 1, 2023
Finding Financial Help for Myeloma
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When, my husband was diagnosed in 2001 with MGUS and then 5 years later with myeloma, the first two thoughts that came to our mind is what he needed to do to survive this and how much was it going to cost? We were never told about the financial assistance that is readily available to cancer patients and specifically for Myeloma patients. It was only after the fact and many years later that I understood how we could have saved dollars and our savings could have remained intact. Even with good insurance we paid heavily out of pocket. I encourage everyone to ask about the cost of your care, understand your insurance and seek out help before the burden of debt overcomes you. Healthtree for Myeloma offers Financial monthly webinars, financial coaches, newsletter articles, and financial training as well a host of financial resource links for you. Even if you think you're ok, it doesn't hurt to get a second opinion about SSDI, Medicare, ADA, understanding financial resources that are available, and anything financial. Let us help Diahanna Vallentine
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AnneB
Multiple Myeloma Discussion • February 25, 2023
Allergic to IVIG? Sharing Tolerable Options
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I have attempted to have 2 different types of IVIG; Octagam and Gammaguard S/D Less IGA. I had some quick allergic reaction symptoms to them. Has anyone had similar reaction and found another product that was more tolerable? I have been recommended Privigen, as well as adding some pre treatment meds. Thanks for the help. Anne
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MonicaV
Multiple Myeloma Discussion • February 25, 2023
Combining Zometa & IVIG: Pros & Cons?
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I'm considering having Zometa and IVIG at the same appt. Can someone share the pros and cons of Zometa and IVIG being at the same appt. Travel is not an issue.
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Susanb
Multiple Myeloma Discussion • February 22, 2023
Managing the Wait for CAR-T: Tips?
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I am getting ready for my diagnostics and cell collection at MDAnderson week of March 7. What restrictions or suggestions does patient have for the 5-6 weeks wait when T cells are being processed? I am feeling both excited and anxious about the whole Car-t treatment.