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Vickijones
Multiple Myeloma Discussion • March 11, 2023
Future of My 19-Year-Old Stem Cells?
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Fred Hutch wants to know if they should keep storing my stem cells or if they should be moved elsewhere or discarded. I don’t suppose they’re still viable after nearly 19 years in the freezer. But I’m wondering if they would be of any use for research or anything. Any thoughts?
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HealthTree User • Admin
Multiple Myeloma Discussion • March 10, 2023
Join the HealthTree 5K: Virtual or In-Person
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The HealthTree Moves Columbus 5K and 1 mile event is open for registration. This will be a virtual and an in person event so don't let distance discourage you from registering. Click on the link below for more information. Feel free to PM me if you have any questions or concerns Also, please send me an email if you would like to volunteer for the event. michelle@healthtree.org https://www.facebook.com/events/1274031416532390/?acontext=%7B%22event_action_history%22%3A[%7B%22mechanism%22%3A%22your_upcoming_events_unit%22%2C%22surface%22%3A%22bookmark%22%7D]%2C%22ref_notif_type%22%3Anull%7D
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PeterC
Multiple Myeloma Discussion • March 9, 2023
Marrow Collection During Knee Replacement?
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Hi, I am a high risk MGUS/BGUS patient who undergoing a partial total knee replacement in 2 weeks. Is there any standard protocol for salvaging the marrow &/or aspirate from the reaming of the femur or tibia for onncological analysis? Thanks, Peter
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rehabceo1
Multiple Myeloma Discussion • March 8, 2023
Managing Specialty Pharmacy Delays?
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Specialty pharmacy delays delivering drugs: I have not had a RX refill delivered on time since last September 2022. I take Revlimid (lenalidomide) and Ninlaro. Both must be ordered through a specialty pharmacy and shipped to me. I've used 3 different specialty pharmacies. The first, Kroger, was the best, but fell out of network for Revlimid. Accredo was recommended and was by far the worst. One delay was 4 weeks with every excuse used to explain the delay. Every order was delayed significantly from October 2022, through January 2023. I worked with my physician's office to change to CVS. So far, with two refills, both have been delayed a day or two due to CVS issues processing the refill. My current refill is delayed due to CVS requiring payment of the co-pay in advance to ship. That is fine. My credit card has been on file with CVS for payment of the co-pay ($1474.39)! Does anyone have a good experience with their specialty pharmacy? Do you receive medications, especially Revlimid, on time?