Hi all, wanted to provide an update and information on latest treatment option. Update and time for a new round of treatment. Over the past six months my Serum Kappa has been doubling and now has reached the threshold at over 100 to initiate a new course of action. My last visit at Moffit was looking at Talquetamab, ten-day hospital stay and follow up treatment. At Moffit yesterday under the expert care of the amazing Dr. Baz here is the new plan. Venetoclax, a selective BCL-2 inhibitor administered at home, Daratumumab, local oncologist administered with (Darzalex) showing really good results with my very specific translocation t(11;14). This specific translocation is present in only 15% of MM cases. Bone Marrow Biopsy to start in 10 days, PET scan a few other tests to follow. I’m feeling really positive with this plan. There always seems to be a new “plan B”. Keeping positive and hopeful, Peter

What are the main side effects you are experiencing? My partner with MM has a persistent cough and issues with his respiratory system. Thanks.

Has anyone tried Sea Moss? Friend is encouraging me to take this to help with inflamation, joint, digestive issues, and anti cancer effects. My friends mean well but I get neverous when it comes to herbs with smoldering myeloma.

My mom was recently diagnosed with multiple myeloma. She just finished her 2nd cycle of treatment. She is still experiencing a lot of back pain that wraps around to the front. Has anyone had this feeling and how long did it last before the treatments kicked in and lessened the pain? Her treatment is Daratumumab, Revlimid, and Dexamethasone.

I was on Rev and Dex until the rev stopped working. Then on to polymist and Dex. Side effects are mostly from the dex. Messed up sleeping. 5 years on the Rev after stem cell and a couple so far on polymist