Your Feed

Filter by
See content from
Back to the latest
Avatar
purplelioness
Multiple Myeloma Discussion • January 16, 2024
Starting KPD + Dara: Experiences & Tips?
AI-generated title
Hello, is anyone here taken , KPD& Dara infusion ( Kyprolis, Polmyst, Dex plus a Dara infusion? I am going into my 1st week. I have triple hit multiple myeloma as well as lambda light chain. I was on RVD Maintenance after my SCT in June2023. Oddly enough, I developed an allergic reaction to Revlimid and was not able to stand it. Please share experience, your thoughts and suggestions about this combined therapy program.
Avatar
purplelioness
Multiple Myeloma Discussion • January 16, 2024
Starting KPD + Dara: Experiences & Tips?
AI-generated title
Hello, is anyone here taken , KPD& Dara infusion ( Kyprolis, Polmyst, Dex plus a Dara infusion? I am going into my 1st week. I have triple hit multiple myeloma as well as lambda light chain. I was on RVD Maintenance after my SCT in June2023. Oddly enough, I developed an allergic reaction to Revlimid and was not able to stand it. Please share experience, your thoughts and suggestions about this combined therapy program.
Avatar
Rick St.Aug
Multiple Myeloma Discussion • January 15, 2024
Stopping Revlimid Maintenance: Experiences?
AI-generated title
I did not have ASCT but have been on 10mg Rev maintenance since the end of my induction treatment 3.5 years ago. IGg Kappa, my M spike has stayed between .1 and .4. Wondering if anyone has stopped the maintenance Rev and what results you had.
Avatar
CATX72Bslp
Multiple Myeloma Discussion • January 13, 2024
Managing Elderspeak: How Do You Respond?
AI-generated title
A couple of healthcare professionals speak to me in a sing-song tone of voice that sounds condescending to me. They might use the words, “honey”, “sweetheart”, etc. It sounds like they are speaking to a young child. I have learned from online research that this is called “elderspeak”. Elderspeak is very annoying to me. I have found lots of articles online to educate nurses about elderspeak. Apparently, some are unaware of this behavior until they hear a recording of their voice. I have not found any articles online that give suggestions about how a patient might respond to elderspeak when annoyed or angered by it. Please let me know how to respond to elderspeak. To Healthtree University: Could you ask someone to write an article for your website about how patients might respond to elderspeak? Your article about “Assertive vs Aggressive Patients” was very helpful to me. We discussed that article in our myeloma group. And, your videos are fabulous! Thank you!
Avatar
kenlevy
Multiple Myeloma Discussion • January 12, 2024
Financial Support: LLS $100 Patient Aid
AI-generated title
LLS has available the $100 Patient Aid Program. There are no income requirements and to be eligible: Reside in the U.S. or U.S. territories at the time of their application. Have a confirmed diagnosis of blood cancer, be in active treatment, scheduled to begin treatment or in follow up care. Have NOT received a Patient Aid Program award in the past. To apply see: https://lls.org/support-resources/financial-support/patient-aid-program
Patient Aid Program | Leukemia and Lymphoma Society

Patient Aid Program | Leukemia and Lymphoma Society

Patient Aid Program > Page Components

https://lls.org/support-resources/financial-support/patient-aid-program
Avatar
Stuart
Multiple Myeloma Discussion • January 12, 2024
Managing Teclistamab Skin Rash - Any Tips?
AI-generated title
Hi everyone - I am a 62 year old South African diagnosed 10 years ago this month and I am still strong. I am on my third dose of Teclistamab. I had pretty severe Cytocline Release fevers on first dose but all good now. I have large skin rash/inflammation areas on my tummy from the sub-cut injections which seem to stay for around three weeks. I'm wondering how common this is and if there are any remedies to reduce the skin sensitivity. Thanks Stuart from Cape Town, SA
Avatar
Qunbin
Multiple Myeloma Discussion • January 11, 2024
Myeloma Co-Pay Assistance Is Available
AI-generated title
The Myeloma Co-Pay fund reopened today at 1pm ET. In addition to the follow funds still remaining open MDS- Myelodysplastic syndromes (MDS), Chronic myelomonocytic leukemia (CMML), Juvenile myelomonocytic leukemia (JMML) (diagnosis formerly known as chronic myelomonocytic leukemia of infancy [CMML]),MDS/MDP overlap syndrome AML - Acute myeloid leukemia (AML), Acute promyelocytic leukemia (APL), Erdheim Chester Disease, Mast cell leukemia, Mastocytosis CLL - Chronic lymphocytic leukemia (CLL/SLL), B-cell prolymphocytic leukemia (B-PLL), Hairy cell leukemia, Large granular lymphocytic leukemia Lymphoma - Hodgkin lymphoma (HL), Non-Hodgkin lymphoma (NHL), T-cell large granular lymphocytic leukemia (LGL), Lymphomatoid papulosis, Post-transplant lymphoproliferative disorder (PTLD) As always, the funds are highly applied to; so please share this notification among your colleagues. To learn more about these funds, visit www.LLS.org/financial-support.
Financial Support | Leukemia and Lymphoma Society

Financial Support | Leukemia and Lymphoma Society

Financial Support > Page Components

https://www.LLS.org/financial-support