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Annborell
Multiple Myeloma Discussion • May 27, 2024
Experiencing Loss of Taste/Smell After CAR T?
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I had infusion of my Car T cell May 6th. I have lost my sense of taste and smell. Wondering if anyone has experienced this as a result of Car T or perhaps the lymph- depleting chemo that had prior to infusion caused it?
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3sisterskaye
Multiple Myeloma Discussion • May 24, 2024
Home Prep & Diet Tips for Post-Transplant?
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Is there a link to how to prepare your home when you get home from stem cell transplant. Also is there a link to the diet you are supposed to be on post transplant. I have information but I thought someone might have some other information to share. Thank u
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1finegrandma
Multiple Myeloma Discussion • May 23, 2024
Managing Gum Infections With Myeloma?
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I was wondering if anyone else is experiencing gum issues. I have had continuous problems with gum inflammation and infections since August 2021. Prior to this I always had outstanding dental appointments. My peridontist hesitates in doing any surgery that may help due to the fact I had Zometa for 2 years which I stopped in January 2018. He ran a CTX blood test which shows how well your bone turnover is. I was at 121 and a normal reading begins at 150. He is concerned with osteonecrosis. In my last visit, he says it is the myeloma causing the infections which doesn't make sense because I just had a CT/Pet in March 24 and it didn't show any bone involvement. Thank you in advance for your time.