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Kneyed
Multiple Myeloma Discussion • June 21, 2024
Choosing Maintenance Therapy, Feeling Great
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Saluti from Italy! I was diagnosed Feb of ‘23 and wondered and wandered about how to treat my disease. Kind of hit bottom last December and accepted the advice of my 2-3-4 th opinions to start treatment. Just finished my 4th round of induction and numbers are great 👍🏻 so with Drs approval I’m taking a couple weeks drug free. I feel great but still plan to be on maintenance and not do the SCT or CART. I’m living life in the present moment with gratitude 🙏🏼 Peace and blessings to everyone 😎
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Tennisgal516
Multiple Myeloma Discussion • June 20, 2024
Experiencing Brain Fog on Pomalyst?
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I am one year S/P transplant and have been on Pomalyst since January of this year. Has anyone experienced fogginess, brain fog, difficulty focusing with Pomalyst. I would categorize my level somewhere in the significant range, with some days a little better than others. There are days when I have trouble coming up with everyday words. I make mistakes when adding events to my calendar. I certainly do not feel like myself and am very frustrated. In speaking with my specialist about it, I questioned the need for a dementia or neurological examination and he did not feel my problems are dementia related but was ok with a neurological exam to rule out stroke or other issues. I’m wondering if I am the only one struggling with this. Thanks!
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llogue82
Multiple Myeloma Discussion • June 19, 2024
Stem Cell Collection: How Long to Reach Goal?
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What are # of days people have taken to collect 5 million stem cells. I will be back for 3 day tomorrow. Current total is 4.11 million with fewer collected today than yesterday