Getting MM literally saved my life! Let me explain: I was diagnosed in Feb. 2018 and didn't need treatment right away. Then in Jan 2020 I was told I needed spine surgery (unrelated to MM). I had that and then had two Stem Cell Transplants-May 2020 and then in Sept. 2020. Both were 15 days each in isolation because of covid. I've been in remission since then and I believe it's because we went aggressively at it with the tandem transplants. I do a monthly maintenance regimen with Velcade and Solumedrol and also take Revlimid 3 days per week. I have a very positive attitude and I make treatment day one that I look forward to-because it's keeping me alive! My spine surgery was the result of the MM original diagnosis - I started doing MRI's, PET scans and Bone scans every six months and they found a benign tumor in my spinal canal and it had tripled in size between June 2018 and Dec. 2019. It was intertwined with spinal nerves and was blocking 90% of the flow of spinal fluid. In fact, when I first met the neurosurgeon at the pre-surgery appt., he was amazed I still had full movement of my arms and legs and said I was very lucky I hadn't had a massive stroke or full paralysis from the tumor because it was blocking so much fluid flow. Surgery was removing 5 inches of my spine to get the tumor out, and then putting in plates and screws to fix. I feel back to normal now but getting MM saved my life! I would have been dead from a massive stroke or would be paralyzed if not for the MRI's, Pet Scans, body scans, etc. that all found the tumor. My belief is to find the positive in your situation-whatever it is. We're still ALIVE and we have options that many do not have!

I'm halfway through my third cycle of DRVd induction and my IgG has dropped over 80%, light chains have almost equalized and are within the normal range. The specialist is even using the term "partial remission." Which is all good and encouraging. My weekly blood draw now shows my overall protein levels are below normal and the local oncologist is recommending boosting plant-based protein intake. I munch partially-salted mixed nuts in the morning to stymie the Rev nausea and have Greek yogurt on my breakfast kibbles instead of milk. What are other good sources of protein or supplements? I want to up my protein, not bulk out with muscle or fat gain.

Hi I’m cmml -1 diagnosed 5/2023 doing wait and c no stem cell said to old I’m 78 in good health anyway just going with flow this is to rare 4 in a million they don’t know much some treatment but not for me yet stay in touch everyone

I am in complete remission from mm for a few years now after going through different regimes and a failed transplant. Now I have no maintence Revlimid or Dex as it was very hard on me. About a year into my journey I read an article about a lady in Tuscany with smouldering mm who was having great results when adding black seeds to her diet. Her numbers got so much better. I started with sprinkling the seeds in my food until I read that the Black Seed Oil Or Black Cumin Seed Oil is more effective than the seeds. I started taking a wee bit as it can upset your stomach. I now take 1/2 tsp twice a week to this day and will continue to do so. It enhances your medication. It helps it to be most effective. My numbers improved greatly with it. I wouldn’t be without it. That’s my story. I’m just telling you what helped me so very much along with my medication and treatment. Hope this helps someone.