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amberTortoise
Multiple Myeloma Discussion • July 2, 2024
Sharing Carvykti Experiences at UPENN?
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Hello, I am going to be starting the process of CarT with Carvykti & will be going to City of Hope or UPENN. If there is a member / members who have had CarT with Carvykti at UPENN & would be open to talking with me about their experience, I would appreciate it! Thank you
Thumbnail for Ide-cel Without Front-Line ASCT: KARMMA-2 Cohort 2B | Xavier Leleu, MD, MSc, PhD, EHA 2024
Playlist: EHA 2024

Ide-cel Without Front-Line ASCT: KARMMA-2 Cohort 2B | Xavier Leleu, MD, MSc, PhD, EHA 2024

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danasdad
Multiple Myeloma Discussion • July 1, 2024
Considering Cevostamab Maintenance Trial?
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Hello from korea! My dad finished the transplant a few weeks ago. My dad has a high risk factor of 1q21 amplification, he was classified as a high risk group because B2M was over 7 and plasma cells were 80% when he diagnosis. Fortunately, it responded well to VRD and B2M levels dropped to normal range and reached m protein 0. Is anyone else doing clinical trials for CO43923? It's a clinical trial that uses both cevostamab and lenalidomide for maintenance therapy after the first transplant. There's not much information because it's phase 1b. Should we do clinical trials?
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Marion
Multiple Myeloma Discussion • July 1, 2024
Concerned About Ratio Nearing Treatment Trigger
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I was diagnosed with Myeloma in January 2024. The Haematologist said I was Watch and Wait and she would see me every month and have my bloods taken. I was with her today and she told me my Lamda/kappa ratio was 95 but if it reaches 100 I will need to start treatment. I am just worried how quickly the ratio can rise from 95 to 100. The diagnosis was a complete shock to me. I am an 81 year old granny with no other health problems only arthritis. What can I do to bring that ratio down? I am so worried.
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NormaL1
Multiple Myeloma Discussion • June 30, 2024
Discussing CHIP and the DNMT3A Mutation
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I just read the research article about CHIP and am thinking I need a discussion with my oncologist. Three years after my SMM dx, I was found to have CHIP with the DNMT3A mutation. The article sounds as if this was a good thing, however, I was treated with cyclosporine because the leukemia specialist believed it was the cause of infections and neutropenia (unrelated to SMM). The neutropenia is now resolved but I am wondering if the mutation persists?
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Iliana • Admin
Multiple Myeloma Discussion • June 28, 2024
Sharing Positivity: Join Our New Group
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Positives Shares Group is a community where patients and caregivers can share inspiring stories, successes, artwork, hobbies, recipes, advice, lifestyle tips, or anything about themselves and their journeys. Join Here: 👇 https://healthtree.org/myeloma/connect/group/87tPU6BgpkqMXXCv5kke?utm_source=social+media&utm_medium=connect&utm_campaign=PositiveShares&utm_content=general
HealthTree

HealthTree

https://healthtree.org/myeloma/connect/group/87tPU6BgpkqMXXCv5kke?utm_source=social+media&utm_medium=connect&utm_campaign=PositiveShares&utm_content=general