Hello! I have Kappa Light Chain myeloma, high risk. I had four rounds induction with RVD and first stem cell transplant in September, second in February. Both were auto transplants. During the second, I got sepsis and was put on meds to increase blood pressure, midodrine and fludrocortisone. After I came home, I started developing joint pain. Started in elbow and pinky on left hand, then spread. I have pain in fingers, elbows, knees, and bottom of feet. Worse first thing in morning. Doctor took me off the fludrocortisone about 6 weeks ago, didn't help. Last week decided it could be the Bactrim, so they took me off that as well. So far, no changes. Fingers do swell somewhat overnight. Any ideas? Next step would be Rhuematologist.

Hello, I am at day 79 post SCT. I did my labs around day+60 and both free light chains were within range and ratio was at 1.12. Three weeks later, I did my labs again and the light chains doubled and are above the range. Both Kappa and Lambda were at around 28 mg/L. The ratio is at 1.02. Does this mean my I am relapsing?

Hello, I am at day 79 post SCT. I did my labs around day+60 and both free light chains were within range and ratio was at 1.12. Three weeks later, I did my labs again and the light chains doubled and are above the range. Both Kappa and Lambda were at around 28 mg/L. The ratio is at 1.02. Does this mean my I am relapsing?

Thoughts on ASCT? I am standard risk, diagnosed 6 months ago, have been on CyBorD. With all the advancements in treatments, I am wondering if it is really necessary for ASCT/harvesting. I have heard that some MM specialists even not recommending ASCT since there are so many other lines of therapy now, compared to 10+ years ago. Looking forward to hear some thoughts on this topic! Have a great weekend everyone!

Hello my name is Farah Chebaro my dad has been diagnosed with Myelofibrosis stage 3/4 on April 30/2024. He has been diagnosed with RAR-ST 6 years ago and now the disease has progressed. He started Jakafi 2 months ago but he is extremely anemic and needs blood every few days. The dr suggested that we provide him with Momelotinib 200 mg. The medicine hasn’t been approved yet at the country we live in and I need help or recommendations where I can get him the medication.

It was wonderful sharing the Amyloidosis panel today with QunBin and Dave. Great to finally put faces with the posts- which have been so valuable to me. Thank you to everyone who attended.