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lilacSquid
Multiple Myeloma Discussion • July 24, 2024
Managing Post-Exercise Fatigue and Dex?
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Does anyone else suffer a transient, post exertional malaise? I am 3 years post ASCT and on a 21:7, 25mg Lenalidomide, 20mg dexamethasone regime. I take the dex on a Friday morning and on a Saturday could do a 20km bicycle ride equivalent without much concern. If I cycle 20km on Sunday morning however I will collapse by the afternoon and this may continue through Monday and Tuesday. If I don't exercise on the Sunday then I am happily able to cycle 50km Tues, Wed, Thur & Fri. For the first two years of maintenance I never had this problem though I had Covid a year ago so I'm trying to figure whether it might be that or possibly development of a dexamethasone related adrenal insufficiency? If you've gone through the same I'd be very interested to learn.
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Waynere
Multiple Myeloma Discussion • July 23, 2024
Understanding My BMB Pathology Report?
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I have a problem understanding my BMB report. I haven’t seen my doctor yet but am concerned with what I am reading. The final con conclusion on the pathology report read: Persistent plasma cell myeloma with 15 to 20% kappa restricted plasma cells and aberrant CD56 expression! Can someone shed some light on this?
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DAH1955
Multiple Myeloma Discussion • July 23, 2024
Starting My Elrexfio Journey
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Just started with Elrexfio (Elranatamab) yesterday. I like to use Elrexfio as I can see it as a spell used by Hermione in the Harry Potter series. Looking forward to sharing experiences as we move forward.
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charcoalPenguin
Multiple Myeloma Discussion • July 23, 2024
Experiencing Pain with Tecvayli?
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Hi all, has anyone else felt increased pain while taking teclistamab/tecvayli? I was told that many patients have reported pain but for how long after starting treatment? Thanks for sharing your experience!