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Playlist: MDS Basics 1

How do you distinguish between a diagnosis of myelodysplastic syndromes and acute myeloid leukemia?

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DIahanna • Admin
Multiple Myeloma Discussion • August 21, 2024
Webinar Update: Big Medicare Changes Oct 1st
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Hello All, Please be aware that my Financial Webinar for September is being delayed till Oct 1st. The reason is I wanted to have as much information available for you regarding upcoming changes to Medicare prior to the open enrollment period. There are huge changes that you need to be aware of that will impact your cost for Healthcare. Tune in on Oct. 1st 1t 1:00 ET.
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BarbaraH
Multiple Myeloma Discussion • August 21, 2024
High-Risk SMM: Conflicting Advice & Seeking Hope
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Hello! I’m newly diagnosed High Risk IgG Kappa light chain SMM (I say that so confidently, considering I’m only vaguely aware of what that even MEANS, lol). My regular Hem/Onc suggests a ‘watch & wait’ approach but when I got a 2nd opinion they said ‘treat now’, so now I’m waiting on a THIRD opinion. I feel scared & overwhelmed. So much information, so many differing opinions! I’m already tired of doctors & blood draws, & all I see is this stretching out lifelong before me like an inevitable death sentence. Please share with me some hope. I’ve been told that as I am very high risk (due to my TP53 deletion & only having 1 kidney) that although I’m technically SMM I might as well consider myself MM already. Anyone else in this (leaky! Lol.) boat?
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auburnDeer
Multiple Myeloma Discussion • August 21, 2024
Trouble Accessing Nutrition Videos?
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I used to be able To get into this site so easily now I am having a hard time. Can someone explain to me how I can get into see the videos especially on nutrition and wellness
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redTurtle
Multiple Myeloma Discussion • August 21, 2024
A Tip for Managing Nutrition and Nausea
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Hello! I’m Yvette, a social worker from Kenya, supporting Multiple Myeloma patients. One helpful nutrition tip is to eat small, frequent meals throughout the day. This approach helps ensure your body gets adequate calories, nutrients and can also help minimize treatment-related issues like nausea.
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kmburke60016
Multiple Myeloma Discussion • August 21, 2024
Dating and Disclosing Your Diagnosis?
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OK, potentially weird question. I'm 53, single, only a few months into my diagnosis. SCT coming in October so the next several months are going to be a wash. My only child is starting her senior year in high school, so she'll be out of the house in a year. So I'm thinking that, if my health is stable, I'd like to consider dating again. Is anyone here actively dating? Do you disclose your condition on dating apps?