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brownWhale
Multiple Myeloma Discussion • October 9, 2024
Lingering Bloating After a Treatment Change?
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After 2 treatments with Revilimid (6 years) then Daratumamab ( less than 2 years) I was placed om Cyclophasphamide. To say I experienced extreme fatigue is an understatement. After 2 months they realized that it wasn't working. Not only that but my light chains shot way up. But this has been the gift that keeps on giving. I noticed that when I started to take this drug my belly became very bloated and uncomfortable. It presses against my diaphram and makes me very winded. Although I am now on Carflisomab ( with good results) my belly remains bloated. I am seeing GI specialist for this, but so far no go. Some others have suggested SOBI which is a small intestine bacterial infection, but I dunno. Anybody ever have this weird side effect?
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lilacJellyfish
Multiple Myeloma Discussion • October 9, 2024
Planning for an SCT After CAR-T?
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Has anyone had a CAR-T, and later a STEM CELL TRANSPLANT? (I declined SCT when I was diagnosed 5 years ago. After relapsing on multiple drugs, I had a successful CAR-T earlier this year. But in looking ahead for when it fails, I'm now considering a SCT. My oncologist is agreeable to this plan but says he has never heard of anyone having an SCT after a CAR-T (i.e., after a successful CAR-T eventually fails). Has anyone heard of this or considered it?
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peachKitten
Multiple Myeloma Discussion • October 9, 2024
Looking to Connect About TALVEY
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Hello I would love to talk with someone who is taking TALVEY or also known as talquetamab. My email is meredits@uwgb.edu. Thank you. SML from Wisconsin
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LadyT
Multiple Myeloma Discussion • October 8, 2024
Doctor Disagrees With Pathologist: Advice?
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Hello should i be concerned that my dr disagreed with the results from a fat pad biopsy where he said he doesn’t believe the pathologists findings where he stated I’m suspicious for Amyloidosis
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mllefoo
Multiple Myeloma Discussion • October 8, 2024
Resources for Finding a Post-SCT Caregiver?
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Hi, Does anyone have resources for finding a caregiver to take care of a MM patient after the Stem Cell Transplant? I have had two potential caregivers back out on me, because they were unable to get time off for a month to care for me. Now I face trying to find a complete stranger to care for me while I recover, or not having the stem cell transplant. I have to pay out of pocket, since I don't qualify for IHSS/Medicare. Alternatively, I was looking at a nursing home, but none of the ones I've looked at will take someone for only a month, and the cost is prohibitive since insurance won't pay any of the cost.
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Thumbnail for Efficacy of Bispecifics in Black Patients in Myeloma Trials | Craig Emmitt Cole, MD | IMS 2024
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