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whitePuffin
Multiple Myeloma Discussion • November 19, 2024
KCD vs. CAR-T? Seeking Experiences with KCD Regimen
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Hello everyone, Had a transplant in July 2020 then Revlimid Maintenance for three years before relapsing in November 2023. Was then started on Pomalidomide/Dara/Dex in December 2023 --> partial response before unfortunately relapsing again less than one year later in November 2024. Now my oncologist wants to put me on Kyprolis/Cytoxan/Dex. Anyone had any experience with this regimen? Anyone experience a long remission on this regimen? Debating on whether to try this regimen vs. going straight to CAR-T or bispecifics. Thank you and God bless each and everyone of you! This forum has been so helpful in my journey.
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JPP2023
Multiple Myeloma Discussion • November 17, 2024
Managing Muscle Cramps On Revlimid - Tips?
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Does anyone have experience with muscle cramps, mostly in the calves but other places as well? I was diagnosed September 2023 and had ASCT in January 2024. I am on maintenance therapy of daily Revlimid and monthly Daratubumab. I am tolerating all this well but the muscle cramps are terrible. Any ideas or remedies? Thanks
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1finegrandma
Multiple Myeloma Discussion • November 16, 2024
Experiencing Darzalex Skin Pain: Does It Subside?
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In a previous thread I mentioned I would be starting Darzalex Faspro. I already take Pomalyst 3mg for 21 days on and 7 off so the Darzalex is new to me. I received my first shot 5 days ago and yesterday I started experiencing skin sensitivity mostly under one arm and my rib cage area front and back. I don't have rash but my skin hurts. May question is has anyone else experienced this and did it subside with time? I would also like to hear about other side effects and did they improve over time. Thank you.
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gknautz
Multiple Myeloma Discussion • November 15, 2024
Determining Resistance in a Drug Cocktail?
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Hi everyone, I am new to this thread so excuse me if I am on the wrong page. My question to group: currently I am on the 4 drug cocktail (sarclisa, RVD) and awaiting transplant in January. Reading a lot about revlimed resistance, with 4 drugs on board, how do they know it is the rev that is resistant and maybe not velcade or sarclisa?? Makes sense?