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Join us! 🙌🏼 Our next webinar will provide information about HealthTree Regional Cure Teams, which launch in January 2025! 🎉 Cure Teams will support HealthTree's vision of a world where every patient and researcher has access to the essential data they need to make informed treatment decisions and discover cures ✨. Register here: https://healthtree.org/myeloma/community/events/dec2024-cure-teams-get-involved?utm_source=social+media&utm_medium=connect&utm_campaign=event&utm_content=general

Hi Y’all Was anyone on a Lupron regime prior to MM dx? Is so are you still on it while going through treatments?

Hi all As I try to understand relapses, I have a 3 part query. a) how many relapses could be possible? b) Also does every therapy post relapse has the same pattern- induction>consolidation>maintenance c) Is it possible to gain a better consolidation after relapse than the previous cycle? Many thanks

Has anyone with multiple myeloma experienced jaw pain while on denosumab? I have multiple myeloma and have been receiving denosumab every three months. Over the past six months, I underwent two dental implant procedures in my upper jaw. Unfortunately, I developed severe jaw pain after the implants, prompting their removal. While the pain has improved, it persists in a milder form in the lower jaw. A PET-CT scan showed no structural bone damage in the jaw, only inflammation. Could this pain be related to an infection from the implants, or is it more likely osteoarthritis or osteonecrosis? Could the denosumab be a contributing factor? If so, would discontinuing denosumab help alleviate the pain or is it a permanent issue? Thank you very much, grateful to have access to this community!

3-Year Real-World Study on Bispecific Antibodies This observational study explores the real-world experiences of patients using bispecific antibodies for multiple myeloma treatment. We’re gathering insights on every stage—from initial awareness to quality of life after four months of treatment. Learn more here: https://healthtree.org/myeloma/curehub/private/research/EuXByoiOsjjWtVmLuu4M?utm_source=social+media&utm_medium=meta&utm_campaign=3yearbispecifics&utm_content=general

What are the challenges associated with using real-world data? 🔬 Research goes beyond new drugs—it includes trials with approved treatments, surveys, and studies to improve patient care and outcomes. 🌟 📚 Learn more in HealthTree University: https://healthtree.org/myeloma/university/courses/3wW8ZeSj7YjuUathUuIH?utm_source=social+media&utm_medium=connect&utm_campaign=HTU&utm_content=general

My father aged 69, had his MM detected in January 2024 with M spike at 2.73 He had 1q gain. He was on VRD treatment and M spike had reached 0.72 by April in just 3 months time. Bortezomib was stopped after total 5 months due to early signs of peipheral neutropathy. And Bortezomib was stopped and he continued with Dex(20mg) 2 times a month and Lenalidomide (10mg). August M protein was 0.56 Few days back, he complained of backache and as was the plan of doing M protein test every 3 months, we did and it has increased to 1.2 Is it very concerning? Has anybody had a similar journey? Would be very useful to understand the same? Thank you!