patrick
Multiple Myeloma Discussion • December 19, 2024
Post-ASCT Strength & Balance: What To Expect?
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Dec 2024
Hi, folks;
I'm a 68yo male, eight weeks post-autologous bone marrow transplant (ABMT) after a slumbering multiple myeloma (SMM) diagnosis in 2013, active multiple myeloma (MM) diagnosis in April 2024, radiation treatment of plasmacytoma and bone lesions in May/June; Zometa infusions through Aug to help with bone lesions. Velcade/Daratumamab/Revlamid/Dexamethasone in June/July/Aug; stem cell collection in Sept and transplant Oct 14. Five days later was hospitalized for gut infections, diverticulitis and typhlitis, for 8 days. Lots of diarrhea, some nausea but no vomiting, fatigue, peripheral neuropathy (showing up as occasional sharp pains, which wake me up a night, but mostly numbness of feet, inhibiting balance and movement) and loss of 25 pounds (about 13% of body mass), much of which seems to be muscle mass. Will likely restart Zometa for bones, daratumamab and revlamid for maintenance next month. Question: Have been improving slowly in movement/ leg strength/balance; thoughts on how much improvement I can expect?
