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Thumbnail for REST Trial: Can Higher Revlimid Doses Safely Improve Outcomes in Myeloma Patients w/ Kidney Disease
Playlist: EHA 2026

REST Trial: Can Higher Revlimid Doses Safely Improve Outcomes in Myeloma Patients w/ Kidney Disease

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Caregiver
Multiple Myeloma Discussion • June 22
MM TP 53 (del 17)
My husband was diagnosed with MM TP53 (del 17) in March 2025. The MM also deleted other chromosomes. He was on Velcade from April 2025 - November 2025 and was taken off it because of the acute pneumonitis it caused. He was in the hospital every month with acute pneumonitis. In November, my husband had pneumonia and the Oncologist stopped Velcade. The Oncologist tried Revlimid, but my husband had a severe reaction to it and the the Oncologist stopped it. Since March 2025, my husband has been on Darzalex and seems to tolerate it. He has received chemo treatments for 15 months and his Oncologist ordered 5 more months of Darzalex. The Oncologist explained that a stem cell transplant was not possible because of the kidney damage caused by his MM. He had healthy kidneys until March 2025. He is now in Stage 4 renal disease. Do you know of foods which fight TP 53 (del 17)?
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Thumbnail for Smoldering Multiple Myeloma EHA Highlights: Multiple Options as Treatment | EHA 2026
Playlist: EHA 2026

Smoldering Multiple Myeloma EHA Highlights: Multiple Options as Treatment | EHA 2026

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Jean2024
Multiple Myeloma Discussion • June 21
ANNUAL PETSCANS and BLOOD WORK
Does anyone know if there is financial assistance with payments for bloodwork (every 3 months) and the balance for the Annual PET SCANS? My insurance covers quite a chunk for both, however, as we all know it is still a pretty large balance owed for these processes. I am okay with my prescriptions for now as my current insurance covers majority of this. Any knowledge on this will help. Thank you Jeannie
Thumbnail for Lower Infections with Elranatamab in Multiple Myeloma in Real-World Settings | EHA 2026
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Lower Infections with Elranatamab in Multiple Myeloma in Real-World Settings | EHA 2026

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Thumbnail for Can Blood Draws Replace Bone Marrow Biopsies? The Promise of Circulating Tumor Cells in Myeloma
Playlist: EHA 2026

Can Blood Draws Replace Bone Marrow Biopsies? The Promise of Circulating Tumor Cells in Myeloma

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Thumbnail for Anselamimab shows improved survival in kappa light-chain amyloidosis - CARES study | EHA 2026
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Anselamimab shows improved survival in kappa light-chain amyloidosis - CARES study | EHA 2026

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Thumbnail for MajesTEC-3: Teclistamab + Dara in Cytogenetic & Functional High Risk Relapsed Myeloma | EHA 2026
Playlist: EHA 2026

MajesTEC-3: Teclistamab + Dara in Cytogenetic & Functional High Risk Relapsed Myeloma | EHA 2026

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Bonniefac1
Multiple Myeloma Discussion • June 18
Velcade post transplant to deal with residual myeloma
I am writing to ask if anyone has had the experience of Velcade plateauing (your M-Spike) during Induction treatment and then post stem cell during Monthly Maintenance having it knock out residual myeloma? Thank you!