lls.org has copay funds available for AML, CLL and Lymphoma, Healthwellfoundation.org also has financial assistance for MM in their Medicare Access program. copays.org has funds available for AML, Cancercare.org has funds available for ALL.

Hello! I am searching for people who have been in clinical trials for High Risk Smouldering Myeloma using Iberdomide as treatment. I am debating on being in a Phase II Iberdomide study that lasts two years. Presently I feel pretty well and am living a active life so I am apprehensive on giving that up. Is there anyone out there that is taking Iberdomide for high risk smouldering myeloma?

Hello all, I am in my 4th year dealing with MM and now at age 84. After having been on four previous medications ( Velcade, Kyprolis, Daratumumab and Selinexor, all with the usual Dex and Lenalidomide or Pomalyst.)all which kept my MM in check. 8 weeks ago needed a change as these meds became resistant to treatment and did not allow me to reach remission. I am now on weekly injections of Elfrexio a BCMA-directed bispecific antibody drug. My labs have improved significantly. Could anyone share with me their side effects? I am terribly fatigued most of the day but more disappointing is the frequent Tachycardia when exercising forcing me to stop when my pulse exceeds 105. This is usually accompanied with a low systolic pressure, high diastolic pressure and of course the high pulse which many times exceeds my systolic pressure. It makes me totally useless. Any thoughts? Thank you Rudi

Today is #WorldCancerDay I thought I would share this well done video on how myeloma develops. Dr. Morie Gertz of Mayo Clinic make this concept very understandable. https://youtu.be/cU5vwNLAuBU?si=NOCQL3CJzjSe7Dv6

Good day all. Just wondering; does anyone else have problems in the morning? I can't wake up. I feel dizzy and disoriented in the morning. My BP was averaging 105/58 upon waking. Dr. took me off of Verapamil. This morning was 118/65 and I still feel sick when I wake up. I take 10mg. of Revlimid with my evening meal. I am wondering if I should switch to earlier in the day. If you are on Revlimid when do you take it? Also on monthly Darzalex and IVIG transfusion monthly. ASC was May 28 of 2024.

My father is 69 and was diagnosed Jnauary 2024 with 1Q gain. Induction therapy started with VRD for 5 cycles till velcade withdrawn due to PN. SPEP came down to 0.6 from 2.65. Maintenance started with RD till bone pain started and when SPEP measured was found to be 1.2 Doctor brings back velcade and replaced Lenalidomide with Pomalidomide 2mg. Cycle timings dint coincide and as bone pain was persisting, SPEP and PET scan was conducted after 2 cycles of velcade and 1 cycle of Pomalidomide. SPEP is 1.3, and PET has new lesion and impression being progressive disease. Doctor says refractory to both immunomodulatory and bortezomib but I thought differently about Pomalidomide because it was relatively short time to conclude so of Pomalidomide. What do I do, confused really.

My father has 1q gain and has relapsed after VRD for 5 months and maintenance of 6 months with RD. It would be useful to learn from anyone here in the community with 1q gain and their journey. The doctor is slightly pessimistic when he is consulted. So feeling a little concerned.

Has anyone had an enlarged spleen while in remission on maintenance ReVilimd? I had a stem cell transplant 2 years 9 months ago.

Hi All- I'm Gwen Aberer from Danville California, east of San Francisco. I am a Multiple Myeloma patient and look forward to learning more about how we can support our immune systems through nutrition and exercise.