Hello Everyone, What a difference a day makes!! or an hour.... OK, the latest. There are several drugs on the list coming up effect 2027 for cost reductions Pomalyst is one of them. For those of you who are covered under a employer group plan be aware. There is a possible upcoming proposal that may hit Congress that employer provided healthcare be taxed. Meaning, the employer paid part of the premium may show up as income to you, therefore taxed. I will keep you updated.

55yo IgG Kappa Refractory in C3W2 of D-kpd Consolidation Therapy. I recently purchased a tin of Mud/WTR and I've been drinking a serving each morning for about a week now. I add a ¼tsp of dark cacao, some coconut oil, a small blob of honey, and a small splash of grass fed whole milk and I love it. I had some questions for my Oncologist and just threw in this info on the MyChart for grins to get he opinion. She said she wouldn't recommend it as there isn't much known about the mushroom extract and chemo drug interaction. Has anyone else tried this beverage and had any issues? It's only been a week that I've been drinking it and I've felt really good with no noted side effects, but I'm generally not one for pushing boundaries!

Just a word about measles: as cases rise, it’s important for immunocompromised patients to remember how easily it spreads. An infected person who coughs or sneezes can expel droplets that remain suspended in the air for up to two hours. Unfortunately, a person with measles can spread the virus to others from four days before the rash appears (before they even realize they are sick.) Since the MMR vaccine is a live vaccine, many of us cannot receive it. A past case of the measles or vaccination for measles (especially after 1968 when live vaccines were used) should still give some amount of protection. However, this is something I didn’t know: “If you think you were exposed to measles…, Immune Globulin (Ig) treatment is effective *within six days of exposure* for high-risk individuals.” I hope none of us are ever affected, but it’s nice to know there might be a treatment available if we are. https://www.michigan.gov/mdhhs/inside-mdhhs/newsroom/2025/03/14/first-measles-case-in-the-state-confirmed-in-oakland-county

Help Shape the Future of Myeloma Care, Share Your Voice in a 10-Minute Survey. Be part of a patient-centered study led by Dr. C. Ola Landgren (University of Miami) exploring how multiple myeloma patients view MRD negativity as a marker of treatment success, its role in treatment success for access to new therapies, and its role in clinical trial design.  Your insights are vital to advancing care and making sure the patient's perspective is heard in research and regulatory decisions. Every voice in our community matters, and your participation could make a real difference in how we support blood cancer patients! Ready to contribute? Click here to take the survey: https://healthtree.org/myeloma/curehub/private/research/RxT3lYUKSbJuAqArLtdM?utm_source=social+media&utm_medium=connect&utm_campaign=mrdperception&utm_content=general If you’d like to learn more about MRD, you can check out an article published in March 2025. https://htree.org/MDRarticle2025survey

Hello Diahanna, Since my multiple myeloma diagnosis, I have been covered by my former employer's medical and prescription insurance. When I turned 65, I signed up for Medicare. Both insurances covered most of my medical and prescription bills. My former employer's coverage ends the month I turn 67 on August 31, 2025. As a result, I am looking into MediGap and Advantage plans and have the following questions. - Is it true that an insurance company cannot deny coverage for a pre-existing condition if it is your first enrollment in a MediGap or Advantage plan but they can deny coverage for any subsequent enrollments? - Which MediGap or Advantage plans best meet the needs of a person with multiple myeloma? -Which prescription plans offer specialty pharmacy coverage for medications like Revlimid? Your webinars make it clear that fewer companies are offering coverage for expensive medications like Revlimid. Thank you!

Hi All, 45 days post SCT, 59 yo, t 4/14 (stage 3). For induction I did sarclisa, vel, rev, dex, complete remission now thinking about maintenance therapy at end on month. Thoughts on dara q month, low dose rev, dex and nilaro instead of velcade?? thinking velcade is probably better than nilaro, but have to come into office every 2 weeks for injection.

everyone, I wanted to share my wife’s story and connect with others navigating smoldering multiple myeloma. She’s 41, otherwise healthy, and was diagnosed after routine labs showed an elevated kappa/lambda light chain ratio. Six months ago, her kappa/lambda ratio was 33.5—recent labs show it has now increased to 68, with kappa free light chains at 28.7 mg/dL and lambda at 0.4217 mg/dL. A small amount of monoclonal kappa protein was also detected in her 24-hour urine collection. Her IgG is low at 583 (normal range 767–1590), which suggests some immunoparesis. Thankfully, she currently has no CRAB symptoms—no significant anemia, kidney issues, or bone lesions. Right now, we’re taking a proactive but conservative approach—no treatment at this point. She’s being monitored at the Mayo Clinic every 3 months with blood work and 24-hour urine tests. In the meantime, she’s focusing on natural ways to stabilize the condition, including a plant-based anti-inflammatory diet, high doses of turmeric, Vitamin C, D supplements, and fresh juices made from broccoli sprouts and cabbage with mustard seed powder(sulforaphane benefits). She’s also prioritizing stress reduction, good sleep, and daily movement. We’d really appreciate hearing from others—especially if you’ve seen stability or improvement through lifestyle or natural approaches. Or if any thing has made things worse. Thank you so much.

I’m scheduled to start Car T Cell Therapy, any one that has done this treatment please share experience and feedback.