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jwbaker77
Multiple Myeloma Discussion • April 19, 2025
Navigating Rising MGUS Numbers - Anyone Similar?
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I am new to this post. Diagnosed with mgus in October of 2023. Currently have IGg lambda type with mspike of 1.62 and lambda lcs of 570.Trisomy on fish and 7% plasma cells on bmb 18 mos ago. Kappa slightly elevated at 33. My oncologist has me on 6 mos. checks but says my numbers are going in the wrong direction. My bloodwork is all normal. Scheduled for abdominal mri on Monday for lesion on my right kidney (hopefully a cyst). Is anyone out there similar or been there done that? Also has anyone pursued amyloidosis possibility wiith their oncologist r/t high light chains. would love to hear from you. Thanks to Healthtree for this forum. I know I have a lot to learn.
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DIahanna • Admin
Multiple Myeloma Discussion • April 18, 2025
Concern Over Cancer Screening Coverage
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Some possible challenges that may affect you. Be aware! There is an challege coming before the Supreme Court. The first is that The new Administration is challenging the need to have preventative care which pays for cancer screens paid for by anyone carrying an insurance plan. We will know Monday possibly the impact of this challenge.
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ChioOsuna
Multiple Myeloma Discussion • April 18, 2025
Join the Chicago Myeloma Roundtable
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Save the date for the Chicago Myeloma Roundtable! 📍Chicago Marriot Southwest at Burr Ridge-Burr Ridge, Illinois 📅May 17, 2025 / ⏰ 08:00AM - 02:30PM CDT Join us for the Chicago Myeloma Roundtable at the Chicago Marriott Southwest at Burr Ridge, May 17th from 8:00 am-2:30 pm to hear from top myeloma researchers. The day includes informative and engaging presentations about the latest in myeloma as well as breakout sessions for both newly diagnosed and relapsed/refractory patients. The event will feature two sessions that include extensive Q&A. 🔗 Learn more here: https://healthtree.org/myeloma/community/events/chicago-myeloma-roundtable-2025?utm_source=social_media&utm_medium=meta&utm_campaign=RTChicago2025&utm_content=general #Myeloma #ChicagoMyelomaRoundtable #MultipleMyeloma #CancerResearch #PatientEducation
Chicago Myeloma Roundtable - HealthTree for Multiple Myeloma

Chicago Myeloma Roundtable - HealthTree for Multiple Myeloma

Join us in-person or online for a Myeloma Roundtable with Top Myeloma Experts in Chicago on Sat, May 17th, 2025.

https://healthtree.org/myeloma/community/events/chicago-myeloma-roundtable-2025?utm_source=social_media&utm_medium=meta&utm_campaign=RTChicago2025&utm_content=general
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Branko27
Burkitt's Lymphoma Discussion • April 18, 2025
Radiation for Residual Disease: Experiences?
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Hello people I've been diagnosed with stage 4 burkitts lymphoma last October 2024 I've finished 6 rounds of chemo and recently had a pet scan with a deuxville score4.5 all is gone but only disease left in pelvis so now I need radiation has anyone been through this please
Thumbnail for What techniques are used to monitor measurable residual disease and how accurate are the results?
Playlist: MRD in AML

What techniques are used to monitor measurable residual disease and how accurate are the results?

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Camaroman
Multiple Myeloma Discussion • April 17, 2025
Questions on Skipping SCT & Xgeva vs. Zometa
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Was diagnosed in 2004 with MGUS, 2005, smoldering myeloma. Since '05 only being monitored every 3 months with blood work, Igg is now at 5400, was on Zometa then switched to Xgeva(prolia). Now lesion found on front posterior rib and doc wants me to go on the 3-4 cocktail of meds and then to a SCT, don't really want to do the SCT, 2 questions for everyone here, how many opted out of SCT and just stayed with the cocktail of drugs and how your doing, (2) how many are on Xgeva compared to Zometa now and which are better in your opinions.
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gknautz
Multiple Myeloma Discussion • April 16, 2025
Understanding Relapse with a Clear Biopsy
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Basic question here: post BMT my cytogenetics/bone marrow biopsy showed no evidence of disease (awaiting MRD) and all labs normal. Was told that disease will come back, my question is: is the cancer cells somewhere in the bone marrow so low that biopsy does not see it and will not see it until it grows and starts to crowd out the normal cells in the marrow?