Hello, just wandering what supplemental treatments people are using. I'm looking into ivermectin, fenbendazole and green tea extracts

Has anyone had a kidney transplant due to MM? Were you on dialysis? If so, how long?

Hi! I'm a fairly new Coach and loving the opportunity to provide support to others going through this Myeloma journey. My journey started in 2020 when I was diagnosed with MGUS, but it kicked into high gear last May when I was diagnosed with Multiple Myeloma. And let's just say, it's been an "interesting" ride so far. What helped me tremendously was going to the HealthTree San Diego Myeloma Round Table in March. There, I had the opportunity to hear excellent speakers, including my doctor, meet other Myeloma patients, and I met a husband and wife coaching team who inspired me to become a coach myself. I now have a couple of months under my belt, and I'm looking forward to what's yet to come. #healthtree #myeloma #aml

Vitamin C allowed my white cell count to increase logarithmically. I know because I tracked this while in a clinical trial. I have not recommended this to anyone. I also tried a naturopath diet suggestion. I felt terrific while on this diet. The idea that one would experience fewer side effects from a chemotherapy or other drug treatment did make sense. However, there is no way it would affect in any way one’s CLL as this is a genetic disease.

Nocturnal leg crampsare something that I have been dealing with since diagnosed. They have been worse the past couple of years. They do appear to be linked to my low magnesium stores. I do take supplements. Make sure your provider checks your magnesium levels as you might need an infusion. I also use CBD and THC one-to-one as a solve which sometimes helps.

Today I had a visit with a new dentist since my insurance company changed companies. I used to go every 3 or 4 months to have my teeth cleaned and never seemed to have a problem..Today I was told I need to have a periodontal scaling with delivery of antimicrobial agents in the gum area. My cost will be @ $400. I am a little concerned about the procedure and they indicated that they would get clearance from my multiple myeloma doctor.. Has anyone had this procedure done?

I am MM patient since 2020. After 4 lines of therapy I had CAR-T in July 2023. A few months back I had labs every month, Jan, Feb and March. That was 3 sets of labs at Mayo and another set at Moffit. All 4 sets of labs reflected a M-Spike of .3. While not high, my MM doc did state that I was definitely slowly relapsing. Same was stated by the Moffit doc. On 7 April I had a BMB and additional set of labs both of which came back negative for active disease. No good explanation from my doc. Does anyone have an opine as to how that could happen?

I would like to know about multiple myeloma specialist in Long Island NY.

I was told in 2018, I was sick for several years running fevers. Finally they did a bone biopsey an the conclusion was MM. LAST MONTH I WENT TO 3 oncologist And one GP, an all had different results. I am beside myself. I don't have many good days my legs an arms are scared. I was at 911, I had my first cancer, that was stage 4, of anel cancer just like Farrah farccett,the mistake was leaving me, saying it's a rectal tear it cost me 12 years of my life! That's why I keep looking for help.

Starting treatment next week, doing blood tests this week. What are they looking for in the blood tests? Assuming these are weekly with treatment?

Diagnosed 1 year ago, follicular lymphona, stage 4, grade 2. My oncologist recommends a 'watch and wait' method as opposed to treatment right now. Is it ever recommended to do immunotherapy at this point? Can anyone recommend any dietary changes that can impact the progression? My oncologist said there is nothing I can do with my diet that will impact the growth.