Please share your experience if you have decided to stop all treatment after being MRD negative and having no M Spike . . (I was originally diagnosed with MM in August 2019) My experience was After one year of perfect labs , no mSpike , excellent kappa lambda ratios and 2 consecutive MRD negative results (4 months apart ), I decided to stop my pomalyst and Daratumabab treatment (which I had been on for two years ). Side effects were fatigue, occasional dry cough and feeling not 100% after the subcutaneous shot. I felt my body needed a break . Of course , I’m continuing monitoring my labs and will check my MRD results every few months.

Hi dear fellow, can you tell me how can I increase my white blood cells and my immune system thank you 🙏🙏🙏🙏

My recommendations would be to never do chemotherapy and limit radiation have whole foods and avoid surgery unless it is completely necessary such as a life or death situation. Build up your immune system and don't destroy it.

I'm a Brazilian male 56 yo. I was diagnostic with mm a 18 months ago , my hematologist in Brasil told me I will survive for 2 or 3 years . I never lost my faith in God and I decided to fight doesn't matter what it rakes I start a quimioterapy at University of Miami and never have any side effect , after 6 months I was invited for a trail with a new medicine , Linvoseltamab , and I'm been in remission since January of 2025 . I did another bone marrow biopsy last week and came with deep zero for cancer cells, and my pet scan shows no lesion on my bones. I'm so happy to share my experience with the doctors at UM and I'm hoping this medicine will be the begging of a cure for MM. Thank you.

Hello Fellow Warriors I have IGA Lamda Mutiple Myeloma High RIsk. I have been doing immunotherapy for 6 months now. About 3 months ago I requested the dosage of my dex be lowered from 40 to 20mg. Since then my M protein has gone up. I was at .3 then the following month it went to .4 and then this month it is still at .4 Could this be due to the reduction of the dex? I really dont want to go back to the higher dose but if it is whats causing my numbers not to drop anymore then maybe I should...

What’s something positive you've learned about yourself through your experience with CLL?

This co-pay fund at LLS is now open: https://www.lls.org/support-resources/financial-support/co-pay-assistance-program

Hi! Interested to hear the experiences of those who have started HRT after SCT. I was diagnosed at 28 (33 now) and have been managing the effects of menopause since my transplant in 2021. There’s been hesitancy from my doctors in the past as I take Revlimid for maintenance (5mg) and they don’t have a lot of data for people my age. I take baby Asprin in conjunction with the Revlimid. It’s hard to differentiate between menopause and chemo symptoms sometimes, but I have a psychiatrist wondering if it would help with my anxiety, energy levels, etc. Thanks in advance!

Is anyone in this group participating in LLS's Scenic Shore 150 bike ride this weekend in Wisconsin? Looks like we might have a little rain on Saturday but it'll be plenty warm both days. I'd love to meet up with any fellow Myeloma survivors doing the ride.

Hello, I am 5 years post SCT with Kappa Myeloma. Recent pet scan indicates a spot on my Tibia so maintenance plan has changed. On pomelyst, kyprolis, dexamethazone. 3 weeks on, 1 off. I’m finding I’m highly sensitive to dex. 20 mg. I wanted to ask my oncologist could we reduce that dose even more but I don’t want it to impede my treatment. Was just wondering if others have experience a high sensitivity to it as well. I work full-time and try to time it so I have the weekend to recover, but it takes about three full days to feel back to normal.

I was diagnosed March 2025 LgG lambda Free Light chain with M-Spike 0f 2.73. All lab numbers have improved significantly since then with latest M-Spike of .3. The confusing part is commentary says tht Immunofixation shows monoclonial protein LgG Kappa Light chain at ,2 of total m-spike of .3... Is this possible to change from lambda free to kappa free light chain? Small print from labcorp suggests that Darzalex (which I am on) might cause a false positive. It's been a couple of weeks since I noted this to oncologist..Have any of you had similar situation? .

So are we talking about a group with Smoldering M&M or some other group?

Hello! I was diagnosed with IgA lambda smoldering this year after a year of fatigue, shortness of breath, iron deficiency without anemia, and a weird sudden intolerance to alcohol. Still unsure if these symptoms are really attributable to the myeloma or if I have something else going on. I'm considering doing one of those virtual second opinion options at Cleveland clinic just to get a second set of eyes on my labs and imaging. Anyone have experience with that?